Sclorederma: Does anyone have this? I... - Lung Conditions C...

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Sclorederma

Woodycat42 profile image
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Does anyone have this? I was diagnosed last year and has just been getting worse. I have lung fibrosis and recently started treatment for pulmonary hypertension so a lot going on.

Anyone have any of these ?

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Woodycat42
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queen profile image
queen

Yes I was diagnosed with Scleroderma in 2010 and lung fibrosis in 2011. I also have severe GERD from Scleroderma. I was blessed with a very good consultant who was quite pro active with my treatment. I had 6 cycles of cyclophosphamide in 2012 and 2016. I am currently on azathioprine and prednisolone to help control the disease.

Plumbob profile image
Plumbob

Woodycat

I have a fibrotic condition in the way of asbestosis and have suffered Sclorederma and finger clubbing !! which when put together plays havoc with my guitar playing Grrr it was one of the few things I could pass my time away with as I'm not a big reader and not able to get out much!! It's eased a bit but fingers are like Cumberland Sausages and I feel I am to the guitar what Les Dawson was to the piano :P

Take Care

Plumbob

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