I have just had my diagnosis of Pulmonary Arterial Hypertension confirmed and feel a bit overwhelmed by the whole thing, even though I was expecting it. We spoke to a Specialist Nurses who stressed what a serious, lifelong degenerative condition it is, and how I couldn't do any cardio exercises and had to learn to live with it etc,.
I have been put on Sildenifil for it, and have also recently started taking Methotrexate for my underlying Connective Tissue Disease. I was hoping that the combination of meds would maybe improve the PAH.
My liver function is a bit off at the moment but once this is stable they are also hoping to also put me on an endolethin receptor antagonist as well.
I am quite debilitated by this, and at the moment can only walk about 100m before I need to stop for a breath, but really want to get back to my normal life of walking and getting out!!
Anyone with more experience than me I would love to hear your thoughts!