a few quick questions to those of you who use the ambulatory oxygen:
how long did it take between you being assessed and when it arrived?
what form does it come in? is it like a gazillion oxygen tanks or...? are they recyclable/disposable?
what has your experience with the ambulatory oxygen been?
(i did the 6min walk again, with oxygen this time and was really chuffed by instant impact - oxygen saturation remained level throughout, as did the heart rate, and i was only a tiny bit breathless at the end - carried the tank in my hand all the way too, didn't think it was at all heavy - are the ones they use in hospitals the same as what we get at home?)
thanks
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southcats
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It may vary round the country but my O2 company, Dolby Vivisol, bring it the same or the next day - if you need it and it's been prescribed, it's dangerous to be without it. The company will exchange empties for new refilled ones.
Im no longer on ambulatory O2 but when I was I asked for paediatric cylinders as they are lighter and I could do much more exercise carrying it on my back. So much more exercise that my muscles became stronger and I was able to get off the O2 altogether. The paediatric cylinders cost more so you would need to make a case for having them, i.e. you'll do more exercise and so get stronger, get ill less often and therefore save the NHS money!
The oxygen delivery men were always very polite and sweet, only complaint which I didnt find a way to tell them, was that they all wore overwhelming after shave
this is so helpful, thanks, O2Trees and interesting that you don't use the ambulatory oxygen any longer. the thing i was given during the assessment weighed about 2kg i think, not heavy at all - and i did tell them that i'd rather carry them on my back, which the nurse said is possible
thanks this is really helpful - no i didn't discuss anything, i get in a panic when i've got those tests and remember all the questions once i'd slept on it :S
It will the oxygen team at your local hospital, they are part of the respitory team who will monitor you oxygen either six monthly or annually.
Try the equipment that arrives, if not suited contact your respitory nurse, she will discuss and arrange any alternative that you require.
It's all down to what you need, where you like to go, the environment at home. They will soon have you sorted so you can enjoy the extra freedom supplementary oxygen will give you.
Hi, mine was also a quick delivery, the next day if I remember rightly. I have an oxygen concentrator for use in the house/garden and cylinders for when I go out, I also have the paediatric size as I found the regular ones a bit too heavy. I did try a portable concentrator but preferred to go back to the cylinders. Try what you get and speak to your respiratory team if you need anything tweaking.
Hi I have just gone onto ambulatory oxygen and use the small oxygen tanks as you say about 2kg in weight for out and about I carry these on a walker and also have two static machines one upstairs and one downstairs with 5 metre hose attached which I don't really like but wouldn't be able to manage without. They delivered 4 tanks of which lasted me 2 weeks so reordered and they came to replace the next day. I would love to get a portable concentrator but waiting to hear if I am going to be able to have lung coils fitted so don't want to go to any great expense as yet. Good Luck with your 02 let us know how you are doing. 🙂
Yes I believe some do I have an appointment with my respiratory nurse on the 23rd of this month at home so hoping to discuss the option of a portable concentrator maybe it depends on the oxygen company I am with Air Liquid. Fingers crossed .
stone,which model did you get?i am assuming it delivers on pulse.if so do you use continuous flow at home and how do the two delivery systems compare for you personaly?regards mike
hi thanks for that.i assume you bought privately as the g3 wasn,t available through your nhs trust.i get the impression from your previous posts that you have done your homework on your particular condition and that although you are managing it with the help of the nhs you seem to be tailoring it if neccassary with your own private intervention.with regard to both treatment and equipment.i like that and eventually when i can get the nhs to take any interest in me fully intend to do likewise.regards
NHS ). it's manageable tho I still find it heavy (ish) tho I have spondylosis in my neck so that has something to do with it. Wondering about the paediatric portable ??? Saw Stone said something about that will go back and read Sam
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