Last July, at the age of 48, after suffering severely from swollen joints for 3 months I was diagnosed with Rheumatoid Arthritis and sjorgens syndrome and put on a variety of drugs including a high dosage of prednisolone and an asthma pump. Initially I felt so much better but within the month I became aware of breathing problems, I was struggling to get my breath when exerting myself- walking up stairs, a slope, distance further than a few hundred meters. Life became very scary and I suffered mentally!
During the last 8 months I have been to hell and back! I have had steroid infusions, antibiotic infusions, chemotherapy infusions, tablets galore but nothing has cured! My lungs!
I now have a diagnosis of obliterative bronchilitis! A rare reaction to Rheumatoid Arthritis. My lungs are scarred and are never going to be better!
I'm learning to deal with my illness and have developed strategies to deal with everyday life but I would love to know if there was anyone else suffering with this rare disease and if we could swap coping strategies.