Physio

[Shazrab]

Hi everyone I've had one appointment with the pulmnory Physio and was told I had forgotten how to breath properly so was given breathing exercise to do and was told my breathlessness would be gone in 3 weeks. That was in February I've got another appointment on 2nd of may and was wondering if anyone could give me advice on what to say or questions to ask I feel like not going but really looking for help as I've just got over pneumonia and I'm coughing all the time hurting my ribs and throat. I also have appointment on 4rth may for second opinion for a diagnosis and I'm so nervous. ThAnks in advance and best wishes to you all xx

[sassy59]

Hi Shazrab, clearly the pulmonary physio was wrong as you have had pneumonia and are understandably very concerned.

Tell the physiotherapist exactly what has happened to you and how you are feeling. On your 4th May appointment again explain everything, have things written down and say how you need to have a firm diagnosis. It would be good to take someone with you if possible. I always go to appointments with Pete as l think of things to say and questions to ask. Good luck to you and hope things go well. Xxxxxxx

[Badbessie]

Firstly from experience pneumonia can take a long while to recover from. I disagree with the physio it can take far longer than 3 weeks for the inflammation etc to calm down and breathing to feel more normal. Have you had a CT scan? I would be asking questions like what did show? Are you going to do a follow up scan? Sassy59 gave you good advice I always make a list of questions to ask. Have you been given a diagnosis other than pneumonia?

[Shazrab]

Thanks for your help with advice, I've had 2 ct scans after the first one I was told I had fibrosis of lung dr waited one year then I got another ct in a different hospital and was told I didn't have fibrosis but he didn't know what was wrong maybe broncotitis. My gp had enough and so did I do that's why I'm now seeing another specialist. It's been a long dragged out 3 years of getting worse with only my go to help who I must say has been great. My partner always goes in with me now anywere I need to go and he's great at asking questions I don't think of so I hope now I'll get some answers as I've started to panic and it's affecting me even trying to go out I think I've spent so much time at home that the outside world seems so big and busy. I'm so greatful for this group and I thank you all for sharing your life as it's helping me a lot to know I'm not alone with my breathing problems. I wish you all well xx