Oxygen Therapy: Hi everyone I have at... - Lung Conditions C...

Lung Conditions Community Forum

55,178 members65,963 posts

Oxygen Therapy

Ef0lumps4 profile image
14 Replies

Hi everyone I have at last been for my oxygen assessment and it would appear that I shall be going the route of ambulatory oxygen. I did the five minute walk or tried to with my walker but didn't last long oxygen fell to 71 I then did the walk again with the aid of oxygen bliss had forgotten how wonderful it is to walk without the strain and stress of puffing and panting pursed lips and all. I am sure I could have done a few cartwheels as well if it wasn't for oxygen bottle and its lead. I am a little nervous going down this route but if it makes my life easier got to go for it. The tank is so heavy yes can hang it on the walker but would have loved to have been totally independent and had a back pack but they are far too heavy to carry. The oxygen company are coming to the house tomorrow all being well to fit the units they are supposed to phone today so shall know more tomorrow. Will be a learning curve I shall ask them about smaller mobile units but I imagine it's a case of what the NHS will provide, and so a smaller more user friendly unit I imagine will have to be purchased by myself, and being retired and not made of money will have to be carefully looked into. Will let you know how I shall get on I am sure there will be moans and groans beware. Hope you all have a lovely weekend the weather at least is on our side. Take Care Pauline X

Written by
Ef0lumps4 profile image
Ef0lumps4
To view profiles and participate in discussions please or .
Read more about...
14 Replies
O2Trees profile image
O2Trees

Pauline, try asking for paediatric cylinders. I used to be on ambulatory oxygen and they gave me those - they are much lighter than standard adult cylinders. Apparently they cost a bit more (crazy as they contain less O2) so I made the case saying I would be far more active if I could have the cylinder in a back pack as like you I wouldn't be able to carry it on my back. Worth a try and you can say now that you know someone who has used the paediatric ones.

Ef0lumps4 profile image
Ef0lumps4 in reply to O2Trees

Thankyou Good to know these things before they arrive I shall certainly ask when they come to fit the units. I love to be in the garden pottering something smaller would be better and even better if I can get it through the NHS. 😄

O2Trees profile image
O2Trees in reply to Ef0lumps4

Mine was NHS :)

mrsmummy profile image
mrsmummy in reply to Ef0lumps4

Ef0lumps4 If the oxygen company is resistant (mine was) then go back to your nurse/prescriber and ask them to order the smaller ones for you.

O2Trees They are only seen as more expensive because they don't last as long and so have to be replaced more often, entailing more deliveries.

Ef0lumps4 profile image
Ef0lumps4 in reply to mrsmummy

Thanks yes think it's worth my asking the oxygen provider when they come, the nurse did mention smaller ones for children but said they didn't last long enough but even if just an hour would be good for pottering in the garden .

Helen6 profile image
Helen6

Hi There, I have recently gone on oxygen. I was given 2 large tanks for the house and 2 small tanks with a backpack to take out. I found that I couldn't carry the backpack, so I rang the company (Air Liquide) and asked if they could provide a trolley. They were really accommodating and have provided me with a trolley that I can pull along. If the company you deal with aren't as accommodating, then ask whoever referred you for oxygen to change their specifications.

Good Luck,

Helen

Ef0lumps4 profile image
Ef0lumps4 in reply to Helen6

Hi Helen I believe it is the same company Air Liquide I do have a walker which I can hook the so called mobile tank on didn't realise they were so heavy so wanted a body pack of sorts but shall see what comes about. Thankyou for your reply all advice from people all ready using can only be good still waiting for their call. 😄X

Helen6 profile image
Helen6 in reply to Ef0lumps4

The tank I have is small (not the one the trolley is designed for). The helpful guy from Air Liquide put a foam block in the bottom of the back pack to raise the tank up and then fitted the back pack on the trolley.

Ef0lumps4 profile image
Ef0lumps4 in reply to Helen6

Sounds like they are really helpful good to know they are understanding and listen and don't just drop off the equipment and bolt . Thankyou

Billiejean_2 profile image
Billiejean_2

Pauline, it's great to hear the 02 helped you so much doing the walk. I hope it continues to help you and make getting out and about a bit easier.

Ef0lumps4 profile image
Ef0lumps4 in reply to Billiejean_2

Thanks Billiejean looking forward to giving it a shot was disappointed they didn't call today as was expected as it's such good weather this weekend was hoping to potter around but not to worry lots more nice days coming around 😬☀️

stone-UK profile image
stone-UK in reply to Ef0lumps4

Hi

It can take two/ three days for you first order to come through.

You get a welcome pack of Air liquide, make a note they only deliver next day Monday/Friday. Orders placed on Friday will be delivered Monday. No delivery on bank holidays. So for Easter order Wednesday for Thursday.

Ef0lumps4 profile image
Ef0lumps4 in reply to stone-UK

Thanks for the info Stone looks like it will be Monday Tuesday when I see them now. Enjoy your weekend.X

Catnip profile image
Catnip

Greetings

I find that I need two cylinders to do the things I enjoy (to have the time!), and a dear friend solved my problem by giving me a "granny" shopping trolley. It takes two cylinders, rolls along behind me and is wonderful.

My suppliers are also going to have trolleys available soon - but for a few quid, you could be up and running tomorrow :)

Catnip

You may also like...

Bronchiectasis oxygen therapy

Is there any harm in using oxygen 24/7 at 3 litre from a concentrator. I am told it will make lungs

PIP when on oxygen 24/7

Medical Unit and receiving around the clock care including constant blood tests, having my oxygen...

Decreasing supplemental oxygen…

you’re on supplemental oxygen it changes and is initiated by a decrease of oxygen. So for the...

oxygen concentrators cost effectiveness

differences (to the NHS that is) of a concentrator versus oxygen cylinders being delivered every...

Oxygen concentrator twisty tubing !

years on oxygen that these devices even existed. Life just got a little easier. If you don’t...