I am writing this from my hospital bed actually fuming over the decision of a younger doctor to take me off IV antibiotics and put me back onto oral. Luckily a senior doctor over ruled that decision and I am still on IV meds but for how long 😩😩
I was first admitted at the beginning of March with fever sob etc and was told by a consultant that I would stay on IV abs for 10 days but within 5 days I was told by a different consultant that as my bloods etc were improving I would be sent home on 11 day course of oral coamoxyclav.
Within a week the signs of infection were increasing but I plodded on with the prescribed meds but less than 4 days after finishing the meds I was back at my respiratory nurse and prescribed another 7 days of clarithromycin. That was last Wednesday but by Friday my Sats had dropped to the lowest I have ever recorded at 40 on slight exertion. Then my daughter came home and struggled to rouse me from a nap ! so here I am back in hospital back on IV as this post started and now facing a fight to stay on the IV for at least the 10 days so hopefully I can stay out of this horrid place.
I have also been referred to the Sleep & Vent clinic for CPAP trial as the respiratory specialist is hoping this will open my airways and allow for better mucus clearance caused by the bronchiectasis. But even though my nurse has been chasing the referral I have still had no news.
I know it's all money & the NHS doesn't have enough but if I can be given the tools to fight these awful diseases surely it would be cheaper than these hospital stays.
Am I within my rights to insist on staying on the IV antibiotics ??
Sorry for the long post but I am at my wits end at the moment. With sats regularly falling below 80 I know I am doing further harm to my body.