oxygen advice

[beattied]

I'm new my names David I have IPF need double lung transplant.

[Billiejean_2]

Hi David and welcome to the forum. Several people here have IPF and some of them are on the transplant list. You will get a lot of good advice and moral support here.

[vittorio in reply to Billiejean_2]

..Must admit I didn't know what " IPF"

[vittorio in reply to vittorio]

OOPS ! try again ! , my computer is a bit like my breathing today - all over the place ! , but having looked up "IPF" , I wish you well, there have been great strides in managing and treating this illness, so good luck ..

[Damon1864 Volunteer]

Hi David, welcome to the forum,there is lots of good advice and support on here. Everyone is lovely and we have a good laugh at times. Take care 😊 xxx Bernadette

[Dragonmum]

I don't have any knowledge of IPF - so many lung conditions, I'm Asthma/COPD; there was someone joined very recently with your condition and I know he had some helpful replies. Nice to meet you and hope you get some info. soon.

[stone-UK]

Hi

Read Tonys profile, very inspirational

healthunlocked.com/user/dall05

[Time_2_drink]

Hope you get advice you need David look at stones post about Tony' take care

[Carnival567]

I hope all goes well for you

[Dragonmum]

Just popped back to say there's a piece in The Lancet today re IPF - it's behind a paywall as usual but I'm sure BLF can access it - it sounds interesting re advances in treatment. Try contacting them.

[Pam1952]

Hello David and a very warm welcome to you. I hope that you enjoy being part of the group and get some valuable information. All the best. Pam 😊😊😊

[cofdrop-UK]

A very warm wellcome to you David.

cx

[capghar]

Hi Dave. I have IPF, diagnosed 5 months ago, was a fit 76 year old and became breathless during an evening meal... result IPF.. I'm on home Oxygen, high doses of steroids have caused diabetes, diabetes have caused retinopathy problems.

However onwards and upwards. .. Not suitable for lung transplant, treatment available is minimal and ineffective. Loads and loads of support. With constant monitoring I able to ward off most problems and can still look after my garden and greenhouse, albeit slowly with many rests for O2.

You need to check that your consultant is an expert in this field, if not change, and the most useful professionals are the respiratory clinical nurse specialist (which you should be registered with) and the home oxygen nurse and team. Great people with lots of useful advise.

[Salmo]

Hi David - Sorry you are here but welcome and hope you find site useful. I also have IPF. On oxygen, Esbriet and and need transplant. I find this site really useful for all sorts of advice and information so please let us know if you need any help advice etc.

[sibkev]

oioi welcome i had double lung tplant march 11 2016 im hear if you need to ask anything just drop me a line on hear and ill answer i also had ipf so i know what ya goin throu one thing i need to say is dont sit back and rest train train train i know its hard but it make post tplant life so much easyer

[Dedalus]

Hello and welcome David