Hi All I really could do with some input. and apologgise foe long post in advance but am at a loss...
I am 57 yrs old and have an extensive med history which i shall try and precis. !980's to present day history prolapsed L3/4/5 and moderate degenerative changes over the yrs. 1983- Lost 12 ft small bowel due to mesenteric infarct. Misdiagnosed as Dr's thought it was IBS because i looked so well! Lots of surgery for adhesional bowel obstructions and removal of gallbladder 2004.
In 2006 diagnosed with hypothyroidism and polymyalgia. commenced on Fentanyl patches and pregabalin for back and bowel pain as i don't absorb tabs very well due to short bowel. Thoracic denervations from T4-T12, and facet joint inj C5/6/7
1009: mini stroke and osteoporosis. 2014: Fibromyalgia ,O/A, Giant Cell Arteritis (GCA) commenced on Methotrexate plus 60 mgs prednisolone which caused 3 stone weight gain. History of falls, unsteady on feet, surgery for torn meniscus and now awaiting total knee replacement when Surgeon knows whats causing increasing breathlessness.
2015: Mod to severe Sleep apnoea on CPAP but don't tolerate mask well.
I see the Rheumy and explain that i think the Methotrexate is increasing my breathlessness but am told that all other disease Modifying Drugs are not without side effects and this is the best for GCA/Temple Arteritis.
2016-17: So over the last 18 months i have had 3 prolonged bouts of pneumonia and my right lung feels like there is a lead weight in the bottom. Up Until my last lot of antibiotics in January 2017 l have been coughing up this vile thick green/yellow sputum but mainly when i do a deep cough. l explain this to the respiratory physician and also my concerns about Methotrexate. He tells me that there is some research that shows that Methotrexate can cause pneumonitis so he decides to carry out a bronchoscopy 6 weeks ago.
Clinical Findings: Acute Inflammatory Process. Brocnchicial Washings show 65% Neutrophils, 20% leucocytes and 15% macrphages. I am seeing Consultant next week but that is because i pushed to have appoint brought forward.
What do these results mean as my quality of life has become so limited and morale so low and yet to look at me i still look well, hence the delayed diagnoses over the years. I am also experiencing severe pains in my lower & upper legs and right buttock, this is accompanied by my toes feeling like ice with numbness and tingling on right side particulary. This is not cramps or sciatica the latter which i've had for over 30 yrs. Then at the weekend my left upper lip started to tingle and it spread to my jaw and up left side of face and down left arm lasting 4 hours then disappeared. Today there is very mild tingling again just on left side of face.
I don't know whether this is related to my breathlessness or i have been worried about MS due to the amount of falls and unsteady walking etc.
I have tried talking to GP and Consultants about this but it gets brushed aside with so many other things going on and because despite all of the above i look extremely well all the time.
I know your are not here to diagnose but i'm in so much discomfort with heaviness in lung so any input would be gratefully received .
I've just received a letter from DVLA to say they are taking my driving licence away due to sleep apnoea.. My Consultant did not send the forms off that the DVLA sent him IN DECEMBER as he wanted to go through it with me in clinic next Monday in clinic.... I feel utter despair as he's seen me twice since xmas and i asked him to sign them then!