British Lung Foundation
34,865 members42,219 posts

Nearly time to go folks

Well it seems thats me nearly done folks...ive already proved them docs wrong twice but i dont know how much more i can do that..my IPF has reached quite a advanced stage plus throw in pneumonia infection & a flu bug caught while in hospital & my chances dont sound great...ive fought off the flu bug i think but the pneumonia is def takin its toll & may have been there for a bit..im on 15litres of oxygen constantly but hoping to get moved to a hospice on Mon/Tues to be more comfy & finish my final days there...its gona happen its just a matter of when it seems...i feel cheated & angry becoz im only 46 & i shouldve lived for at least another 20yrs or so..im a good person never done anything bad in my life but life is very cruel..excuse my french...so all i can say is enjoy life to the fill & be happy...goodbye & thanks for your support on here x 🤗💕

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Awe Stevieboy please don't give up hope, .Will be thinking of you and you family, please keep fighting. Lets us know how you are doing, we are all here for you. Take and keep smiling, God loves a tryer. 😡 xxxBernadette

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Stevieboy I have no idea what to say to u, except ur right life is cruel and u use all the French u like, I know the air has often turned blue with me. Thinking of u xx sonia xx

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Isn't life crap sometimes Stevieboy? You seem to know you are nearing the end which is sad but you have done kind of acceptance in your post.

I hope you find comfort and peace. Bless you. Xx 💖😕

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Oh Stevieboy, how awful for you - thinking of you and wishing you peace and love x

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Only the good go young that's what older people used to say. My thoughts with you and your family. I truly don't know what to say xx

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"...ive already proved them docs wrong twice but i dont know how much more i can do"

Why not do it a third time, just to show the ****ers ;-)

A lot of people will be rooting for you.

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I think you are very brave but don't give up I know how you feel I have emphysema and I've had three Tia's but I am not going to give up yet, take care I will be thinking about you.

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We are rooting for you stevieboy, keep posting, keep fighting, life is cruel Stevie, none of us will get out of life alive. Keeping you in mind stevie and sending heaps of hugs and best wishes xxxx

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My thoughts are with you. x

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I don't know you stevieboy but my thoughts are with you. Xx

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Hi Stevieboy. Yes, life can be very cruel, but what's the saying? "Where there's life, there's hope ". Who knows what's round the corner? Give it your best shot.....defy the odds again. I truly feel for you and will be thinking of of you. XXX

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You sound so desperate, Stevieboy and lonely. Keep fighting if you can, keep posting. We're thinking of you and we're sending love, Sue x

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Hi steviboy no words are appropriate at this time I do hope you find comfort in our replies and remember we are always hear for you.

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We none of usknowexactly how much time we have left, try to live for the moment, you are brave, a survivor, write down your feelings, as you have done to us, each day,we are all rooting for you, gd vibes are coming your way. Love Iris x

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Hi Stevieboy I don't know you but your Post has touched my heart. You are very brave. You and your family will be in my Prayers tonight and every night.

Life can Be very unfair for sure Sending love and strength for the journey to you. I suppose realistically we are all headed that way but for some it's that bit sooner.

Warm thoughts and love and light to you.

Hannah

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Hi Stevieboy, I don't know you but It was so sad reading your post.

Your obviously rock bottom and all out of fight and who wouldn't be,after all you've been through lately.

I can only hope that you start to feel stronger, every hour, every day, until your fighting spirit comes back.

You'll be in my prayers xx

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Stay strong and keep fighting sweetheart. It's one thing to accept and another to give up. You have proved them wrong twice before so do it again. My thoughts are with you and we are here for you any time you need to talk or just need a hug.

Hugs

Shelagh

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Bless you Stevieboy. My heart goes out to you and I can't find any words to bring you comfort. IPF is such a cruel disease and you are right it isn't fair. I am thinking of you.

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Please don't give up the fight. You have been burdened with so much recently, perhaps you have more time than you think? Hospices usually take a different approach than hospitals and often cut out any unnecessary medication which might make you feel better for a while and afford you some precious quality time to spend with your loved ones. I wish you a good transition and inner peace.

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Sending thoughts of love and peace for whatever is facing you, Stevieboy. I am sure you will find comfort and support at the hospice and on here too if you need someone to talk to. xxx

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I hope you find peace.

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Oh Stevieboy sweetheart my heart goes out to you, I am so upset to read your post. I hope you have good support around you.

I can understand your anger, life is so unfair and cruel at times.

Keep fighting and if you can please keep posting- if you need to talk, cry or be angry we are here for you.

You will be in my thoughts and prayers.

Xxxxxx

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Oh Stevieboy,you have been so strong in the past,& im sure you will keep the good fight up!

I do hope you have close family to be with you.It is terrible that life can be cut short,whilst still so young,my heart goes out to you.

You will be thought of in my prayers also,

Gentle hugs love,Wen xxx

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Hi Stevieboy

I dont know how to reply but feel i realy need to reply. So sorry if i waffle on.

Firstly i must say i am very sorry to hear your sadness i pray with all my heart that you beat this for the third time. You are very young. I lost my mam when she was only 45 If you have family and you feel up to it write them all something personal they will treasure it for eternity.

Also I look after people on End of life and the lady i look after at the moment was in a hospice some 4 years ago to live out her last few weeks. She is now home and i have been looking after her for a year and she is not in any hurry to go anywhere she is still so full of life.

I hope and pray you too also have many more years to live

Again i appologize for waffling please know people are rooting for you x

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I will add my prayers to the others that have been sent to you.

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Stevie, I am so proud of the way you are facing this, making light of a heartbreaking situation. You have every right to be really angry if you want. There's a lot of love coming your way over the airwaves so be ready to soak it up. Good luck sweet man... xxxx

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My thoughts and prayers are with you xx

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In my prayers Stevieboy...May GOD protect you.

Will

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Don't give up.

Stay positive.

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My thoughts are with you, medicine is not always right!

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Please don't give up fighting. It is natural that you feel angry - life is cruel. It seems to me that it doesn't matter whether you've lived life to the full, or lived life to the full, we're all equal when it comes to being dealt sickness and ill health.

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Hi Stevie boy 03 I am sending you lots of spiritual wishes that if and when you pass over it will be peaceful but until then I hope the hospice staff take good care of you. I am so sorry your life has been so short but as you said life sucks it always seems to be good people who get to suffer the most and it does not make any sense anyway it was very nice to converse with you this once so a very sad goodbye x

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Hello Stevieboy I rarely comment on people's posts but I couldn't let your post go unanswered. My heart goes out to you and your family but I also know there is little anyone can say to ease your emotional pain. 46 is incredibly young to be so ill but it's not the years we put in that count, it's what we put into those years. You are incredibly brave and philosophical, a role model for many of us.

I hope you are wrong in your belief that time is now running out for you we can never be totally sure when that moment will come.

I am not a religious person but I do believe that our real self, or what others call our soul, lives on in the Universe, We also live on in the memories of our loved ones and it is those memories that help then through the dark times.

What ever time you have left in this world whether it's to be long or short Stevieboy,I wish you peace and both emotional and physical​ comfort.

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Hope you will find peace and comfort at the hospice, but never give up - miracles happen every day, and I can see you're a fighter. Praying for you x

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💜💜

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Thank you for posting. It took courage. Hospices are brilliant.

Love and gentle hugs

K x

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Sending you love and gentle hugs Stevieboy.....xx

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Sending you love and comfort, thinking of you x

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Hi Stevieboy, my heart goes out to you, never give up as hard as it may be we never know what tomorrow brings. I for one will be here praying for you as will many others. I send my love to you 😘

Peg xxxx

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Thinking of you and sending much love xxxx

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Please don't give up,still keep a positive attitude. Everybody on this site means so much to me because I see myself in everyone of you brave people. Xxxx

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Hi stevie

I know it's easy for me to say and you have probably heard it a million times but stay strong u never know what's round the corner🌈

Jimmy1c

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Please please don't give in yet.. you have been so brave and fought your illness so well.

Life is prescious........Prove everything and everyone is wrong........Keep fighting.

Jo.

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Stevieboy, I don't know you, but I wish I did! You and your family are in my thoughts. John

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Stevieboy , I am so sorry that you have been so ill and are now going to be made comfortable as possible in the hospice. 15ltres a minute is a lot and my heart goes out to you. Our bodies can let us down and sadly weren't made to last forever but we are eternal beings all of us.

I am just getting ready to go to a hospice here where my dear friend Evan who I've known for nearly 50 years is a patient , he has been through so much the last two years. I don't want to waffle on just wanted to wish you love and hug you, huff xxxx

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I am not on site a lot but I was moved by your post.

You have put up a good fight and won a few times already stevieboy DON`T give in now, fight and keep on fighting laugh and keep on laughing ( laughing is one of the most powerful medicines in the world) hold on tight to your faith and believe in yourself.

My thoughts and prayers are with you and will remain with you for another 20 odd years.

Tom.

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You've beaten the odds more than once, don't give up now stevieboy; we are all in your corner as you can see and win or lose you are a great fighter. Keep talking to us, we are all here for you.

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I have only just seem this post too, and i don't know you either; i can only say that I hope you are going to a better place, where you will be at peace without suffering. xx

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Don't know what to say really Stevie boy, but you sound like a fighter so if you can keep the fight going AND WIN THIS ONE please keep posting if you can we are all with you.

God bless

T👍

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Take care mate .... I am 58 been to hospis 45 times in 18 months I am still here ...take care...

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Please don't stop fighting

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None of us know for sure what is going to happen from good day to bad day to good day..we never no.When you think about it no one does. Keep strong..thoughts from Downunder are with you.

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Whatever is facing you in the future, I wish you the kind of peace that passes all understanding x

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Hi Steveboy, I send you hugs and hope you can find the strength to carry on fighting. I will say a prayer for you and send a hug too xxx

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Dear Stevieboy. Tears in my eyes as I write this. Whilst accepting the truth - we all have to go. I'm in a real dilemma whether to say don't give in and fight - In the words of the Famous Welsh Poet Dylan Thomas - Do not go gentle into that good night. Old age should rave at close of day: Rage , rage against the dying of the light. But as you say you are not old.

Bless you. You are surrounded by many friends and much Love - just read the responses.

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Thinking of you with love x

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Thinking of you, I hope you find peace.<3

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I am new to this forum. Diagnosed two weeks ago Steve. Its the first post I have seen someone been so open about there future. I'm sad reading about your predictive future. You are younger than myself, and its hard to read. If you are right, I wish you well for the rest of your days. Hopefully its not your time. Although, I'd like to say to any friends or family of stevie, please make the most of of the time he as left.

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Leave in comfort please.This is my wish for all xx

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Dear Stevieboy, you must be feeling so desperately ill, with pneumonia on top of IPF. I am very much hoping the pneumonia can be cured, so that you feel better in yourself. Hospices tend to be loving, cheerful places. I very much hope you will be able to find a few moments, to let us know how things are.

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Keep fighting 💙

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Hi Stevieboy,

Hope you are well as can be.

Thinking of you

Xx

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Should a sad post this is. Hope he has improved and is still with us. 😢

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Hi does anyone know how Stevieboy is. Please tell me he won another battle..

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Hi I have just been reading bout Stevie bless him did he make it do you know xx

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