I haven't been on here for a long time, but I wanted to thank all those that gave me advice and help on questions I had regarding both emphysema and pulmonary fibrosis.
My beautiful mum was diagnosed with both in May 2016 and was on ambulatory oxygen at 3lpm from about July. Whilst she was absolutely fine mentally, she did struggle with the breathlessness. After having a few appointments cancelled and rescheduled for a few months later, she unfortunately didn't get the chance to have her medication adjusted or follow up x-rays/scans to reflect the worsening of her condition until it was too late.
She was admitted to hospital in November of last year with severe breathlessness and fluid retention and was diagnosed with pulmonary edema which was the cause of her worsening breathlessness. She was placed on new medication and all appeared to be working just fine and she was managing to walk really well on 0.5lpm of oxygen, however, it wasn't doing her kidneys any good. She was transferred into intensive care on the 19th January to be placed on dialysis as the fluid was building up again and whilst she was still fine in herself, she sadly passed away on the 21st January after contracting sepsis.
I am totally devastated, however, I know how much she found her lung conditions debilitating and I often wonder if she hadn't had all her respiratory appointments cancelled if things would have been different ..... this I guess I'll never know.
I wish you all well and want to thank you all for your support. We raised a few hundred pounds at her funeral which has been donated between 4 charities, so hopefully this will help with research into these horrible conditions.
Love to all