Mucodyne side effect

[roz38]

Hi I have been tried on carbocisteine on 3 separate occasions and have severe skin rash. I have been told there is no other medication available to loosen the sputum. Does anyone know of any?

[mrsmummy]

Drinking plenty of water helps to loosen and bring up mucus.

[roz38 in reply to mrsmummy]

Doing that! Just read in derby hosp copd booklet that this should go up to 6 pints when you have a flare up.Did not know that bit. Doing this on my husband's behalf. Seem to get different info from every dr/nurse he meets. Thanks for replying to us. Roz

[mrsmummy in reply to roz38]

You could also ring the BLF nurses on their Helpline on 03000 030 555 during office hours. They are a great source of advice and support.

[roz38]

Yeah. Done that too! Cheers

[Hidden]

He could try nebulising 7% hypertonic saline. Mucodyne didn't work for me but HTS does. It works by osmosis. He needs to ask for referral to a chest physiotherapist, who can arrange for him to try it in the hospital clinic (the first dose must be under supervision.) Then he can get it on prescription from the GP.

[roz38 in reply to Hidden]

Thank you.He can try that hopefully.

[Titchy52]

I'm on the syrup but I it's so sweet it makes me feel sick x

[Hidden in reply to Titchy52]

Why can't you have the tablets, Titchy?

[Titchy52 in reply to Hidden]

Hi hanne62 I was on the tablets for about 3 years I think they got used to me so doc put me on the syrup I still got loads of the mucas it get so bad it wakes me up choking it's so scary .

[roz38 in reply to Titchy52]

I was going to ask Dr about syrup but if it is sweet it will be a no go.. Thanks for info

[Nitap]

Hi there, there is another tablet for mucas it is called Erdotin. I have been taking Carbocisteine tablets for a while and I am on a new neb for a nasty virus I have picked up !! While on this, difficult to bring up any mucas so my RT prescribed a 300mg Erdosteine capsules emergency dose twice a day hope this helps xx

[roz38 in reply to Nitap]

Thank you.

[Hidden]

Are you on capsules or the syrup? I have been on syrup 15 ml three times a day for years & had no skin rash problems.

[Hidden]

sorry roz38 i did not read all the reply's. Anyway i think the the taste is lovely. Yum.

[roz38 in reply to Hidden]

Hi. I would probably like it too but can't see hubby tolerating it! Thanks for getting in touch.

[Hidden in reply to roz38]

Never know until you try roz38. anyway i thought it was about a skin rash not how it tastes, we are talking like its some sort of single malt whisky L.O.L.

[roz38 in reply to Hidden]

Hi. Shall we try to get s.m.w. on prescription. That would be lovely

[Hidden in reply to roz38]

Er roz38 i had to laugh, but than, no, look let me know how you get on. And yes it would be lovely even though i had to stop drinking 3 years ago amongst other things i reckon i could find time to celebrate a wee dram of s.m.w. on prescription.

[warwickstag]

I'm same as Hanne - found Carbocisteine very ineffective and now I nebulise 0.9% saline solution which is much more effective but can make me breathless sometimes.

[roz38]

Hi. We managed to get telephone appt with gp yesterday and asked about nebulizer and were told to try steam inhalation with a towel over his head!! Will try to get face to face appt next but our surgery has 8 wk waiting time for appts at present. Thanks for replying.

[Hidden in reply to roz38]

Some GPs, they make you weep don't they? Can I suggest, when you go to the surgery, take a recently produced sputum sample in a clear pot and turn it upside down in front of the doctor. If it's anything like mine it won't move at all, it'll stick to the lid like clay. That might convince the GP it's impossible to detach such stuff from your lungs with a steam inhalations.

[roz38 in reply to Hidden]

Oh boy,I am so glad I've found this group. That made me laugh, just imagining doctors face. My husband has been mismanaged from the start. I think about writing the whole lot down and selling it for comedy show. We thought it was only us but reading other's experiences we realise it is more like the norm!

[Hidden in reply to roz38]

Seriously though, Roz, I see two consultants at different hospitals and the first thing each does is look at the colour & then turn the sample pot upside down to see how sticky it is. Don't forget about a referral to a chest physiotherapist, that's so important.

I'm sorry he's had such poor care up to now. There are people here who get really good care though, so it is available. You just have to keep pushing and don't allow yourselves to be fobbed off. It's a struggle, I know.

[roz38 in reply to Hidden]

Hi thanks so much for your words of wisdom, everything you say makes sense. At moment we are locked in battle with gp to get a referral for O2 assessment. We say that he needs it for exercise ( which has been backed up by respiratory nurse)Dr said he does not need it until he cannot walk to front door!!! Grrrgghh

[Hidden in reply to roz38]

I don't have copd, so can't be much help, but aren't there guidelines, eg from NICE or British Thoracic Society, about when an O2 referral should be made? I'm staggered at the poor care some people here seem to get. We have enough problems without having to deal with these brick walls. I'm lucky to have a good surgery and a caring GP, and lovely consultants too. It should be the same for everyone.

Ed: I googled & found this, don't know if it's of any help nice.org.uk/guidance/qs10/c...