Starting Methotrexate for Sarcoidosis - Lung Conditions C...

Lung Conditions Community Forum

54,983 members65,771 posts

Starting Methotrexate for Sarcoidosis

Minsha profile image
19 Replies

Hi all

I was wondering whether anyone is taking Methotrexate for their lung condition? I'm on 60mg of predicted at the moment and and Dr's want to introduce methotrexate. Has anyone had any side effects from using this .does anyone know the long term effects?

Written by
Minsha profile image
Minsha
To view profiles and participate in discussions please or .
Read more about...
19 Replies
Roessner541 profile image
Roessner541

I've never heard of it on sale

Hi Minsha,

I have taken it for some time,the lung specialist put me on it,never had a problem with it.Often used for Arthritis I believe.

Good luck,let us know how you go with it,

Cheers Wen xx

in reply to

Meant to say,Rheumatoid Arthritis,I have Copd!

Minsha profile image
Minsha in reply to

Thanks wen....am relieved to hear good things about it x

Nottobad profile image
Nottobad

Hi I was offered it for my arthritis. After the rheumy consultant. Said one of the side effects could be damage to the lungs.i refused to take it. As I already have damaged lung. With having COPD. And didn't want to chance it. Or make my lungs any worse than what they are you have to have regular blood tests with taking this medication as it could also damage your liver.

Minsha profile image
Minsha in reply to Nottobad

Yes ..They did talk about side affects so i was really concerned and wanted to ask some of you guys

I refused it for my lungs as I was in my 30s at the time and you can't get pregnant if you're on it. My friend has been on its for crohns. It's supposed to be very effective but like all drugs has side effects. Do your research and decide what is best for you xx

Minsha profile image
Minsha in reply to

I'm in my early 40's and my lungs have already been damaged significantly so I've got to try it now ...let's see how it goes x

in reply to Minsha

Best of luck. Hope it works for you xxx

Minsha profile image
Minsha in reply to

Thanks..fingers crossed

Caspiana profile image
Caspiana

Hello Minsha .

I have been on Methotrexate for about eight years now. I started it before I got my lung disease having being diagnosed with Rheumatoid Arthritis. I am on a relatively low dose of eight milligrams a week. The only side effect I had was the many mouth ulcers that would spring up in my mouth causing quite a bit of discomfort, so my dose was adjusted. I think many people take it long term with no problems. It really is case by case and it depends how well your body can tolerate it. Always let your doctor know if you feel some adverse effect. They can advise you on what to do. I know it is frightening. But you will get used to it. Let us know how you go.

Sending you happy thoughts.

Cas xx 🌞🌹🌷🌞

Minsha profile image
Minsha in reply to Caspiana

Thanks cas x

I have lung sarcoidosis, just been confirmed this week but have not been given any treatment, I also have stage 2 copd with emphysema?

Minsha profile image
Minsha in reply to

They will probably give you something but it needs to work with your current meds I expect. When is the next appointment for you to discuss the sarcoid treatment?

Titchykath profile image
Titchykath

I have been on it for 8 weeks along with steroids , no side affects yet, bloods taken every two weeks no issues with the results, my breathlessness seem to not be so bad , so I am happy to carry on taking them at the moment .

Minsha profile image
Minsha

Many thanks for this lath. .its really reassuring x

lilly-rose profile image
lilly-rose

Methotrexate is a chemotherapy drug. Make sure you have regular blood tests ie liver function. As well as damaging lungs it can also damage other organs.

Minsha profile image
Minsha

My lungs are already damaged ...so why are they giving it to me ?

Jomo46 profile image
Jomo46

I was on it for 7 weeks. All the blood tests were ok but I found it made me very tired to the point of just sitting in a chair for 2 days with more breathlessness. I have been changed to mycophenalate this week. It works in a similar way switching off an autoimmune response.

You may also like...

So Yet Another Follow Up - Starting I think 2020 - Bizzar,

those who know me will know not long ago I had scan including PET Scan for suspected Lung Cancer or...

Re bronchiectasis, should I start emergency antibiotics if I catch a cold?

I'm about to go away for 10 days with someone who has just told me they've got a cold (it's not...

Has anyone taken Ciprofloxacin?

infection and am concerned about all the serious side effects this has. Has anyone experience of...

Nebulised Colomycin Trial

Had anyone who uses this had an any great success with it and is there any side effects taking this...

Swollen feet anckles

are not working this time ,does anyone k now if this can be side effects from inhailers