In case you don't know and I apologise to those that do, but are you aware that 65 is a magic age. I will explain. As I had mentioned previously I was diagnosed with A1 some 14 yrs ago, but it is only in the last 3/4 yrs that it has worsened, and as of 14 months ago I went on Oxygen. In my case I persevered trying to keep fit, doing everything I was told I had to do to make my life easier but when I needed help, it was no, sorry. At 66 I was told I wouldn't be able to apply for a mobility vehicle as you have had to do so by the age of 65. Although I had asked about a lung transplant a year or so ago I am told by the Specialist at the Royal Brompton Hospital only last week that as I am over 65, I am to old. The only thing which I have been able to get and that was only after a Nurse at my six monthly review by my local consultant told me, which is Attendance Allowance ( if your not on it and over 65, google it). This is not me having a go at the system, to me my problem was hereditary so it's just one of those things you have to deal with and get on with life. So, in case you didn't know, now you do. If their is something you know which everybody is entitled to or can get please let us all know.
Have a nice day.