JS59: Hello I'm new here and I'm... - Lung Conditions C...

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JS59

27 Replies

Hello I'm new here and I'm seeking friendly people to talk to about experiencing this hideous disease COPD. Its becoming very severe lately with 13% of my lungs that work, I can walk about 10 - 15 foot max and gasping for air! As you know the coughing & the nebs & meds make one so tired. Anyway I know there are lots of us out there & a lot worse then me!

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27 Replies
mrsmummy profile image
mrsmummy

Hello and a big welcome to the site.

in reply to mrsmummy

Good evening mrsmummy. Thank you for welcoming me to the site. x

Damon1864 profile image
Damon1864Volunteer

Hello and welcome to the forum😊 xxx

in reply to Damon1864

Hello Berny, thank you for your welcoming reply. With the interests & family you have it would be hard for me to believe you could get bored. Stay well.

Donna1962 profile image
Donna1962

Hi I have copd and my lungs are working at 27 percent I still get around but get very out of breath too

in reply to Donna1962

Hi Donna & thanks for the welcome reply. Yes the out of breath situation can freak me right out to. Hang on in there. x

Toci profile image
Toci

Hello, I have COPD and my lung function is currently 14% but has been lower at times. Welcome to the forum.

in reply to Toci

Thank you Toci for taking time with your welcoming reply. x

sassy59 profile image
sassy59

Welcome JS59. You are among friends. Love the picture. Xxxxxx

in reply to sassy59

Thank you for your kindness sassy59. xx

hufferpuffer profile image
hufferpuffer

Hello🙋 and welcome to the site , I hope you find it as wonderful and helpful here as I have 😀

Sorry your lung function is fairly low , it has taken me a decade to improve my numbers and I hope you can. I think it is the oxygen treatment that has helped me move around better and eating better I used to be terrible 😊

Nice to meet you 😁 huff 🍎🍏💐

in reply to hufferpuffer

Thanks for your welcome reply huff. Kind words. Its good to know there are lovely people like yourself I can talk to.

Good evening JS59, and a warm welcome from me too.

I have moderate copd, and don't know any of my numbers. I am fine with Fostair, but at the moment am a bit poorly with a rotten cough and cold and feeling miserable, tired and grumpy. I really like your graphic image...it looks like he is spitting...something we are all familiar with:-)

Keep writing in, we'd all like to hear from you.

in reply to

Hello Jennifer-s, thank you for your warm welcome & making me feel comfortably wanted. xx

PenelopeS profile image
PenelopeS

Hello JS59 & a warm welcome from me too. I am sure you will pat yourself on the back for joining the site & will get lots of helpful advice & sympathetic ears if you feel like a moan. Hopefully you will have a few laughs from time to time.

I have severe COPD & I know where you are coming from, it is a nightmare when the simplest task leaves you gasping for breath. You seem to have a positive attitude & without a shadow of a doubt that helps. Upwards & onwards, for tomorrow may be a better day 😊 Penny xxxx

in reply to PenelopeS

Hello Penny, thanks for your inspiring words. I like to think there will be more laughs then moans. xx

Time_2_drink profile image
Time_2_drink

Hi Jess I only joined myself yesterday I'm sure we will get some. support on the site .It is a really scared time isn't it it seems surreal sitting here with a oxygen mask

susie1957 profile image
susie1957

hi I have c o p d when I walk I feel tight chested and very breathless will jump up in bed at night short of breath .the last year it has got worse .chest infections after chest infections when winter comes spend most days stuck in doors.but well get a some days in summer were I will feel so well I for get I have c o p d .

Toci profile image
Toci in reply to susie1957

Have you mentioned the waking short of breath to your doctors? You may have a condition called sleep apnoea which necessitates wearing a mask at night to keep your breathing at the right level.

in reply to Toci

Good morning Toci, yes I do have sleep apnoea & yes I have the machine & the uncomfortable masks ( I have 2 different ones) that go with it. After nearly 3 years of this I am still not used to the pressure on my face. It likes to bring blood vessels to the surface of the face for a few hours after you take it off. xx

Buzzytruk profile image
Buzzytruk

Greetings and welcome,. There are a great crowd of boys and girls on this site and you will find lots to talk about.

Jo.

in reply to Buzzytruk

Hello jo, thank you for your welcome. Feel a little rough over the past 2 weeks but I will try to uplift people rather than bring them down. Talk soon. x

Dragonmum profile image
Dragonmum

So glad you found us and big welcome from me too; I've had more help on HU, on so many levels, than from all the docs put together!

in reply to Dragonmum

Thanks Dragonmum, I can well believe the things you say about the docs that's for sure! x

onamission profile image
onamission

Hi and welcome to the site we are all different levels on hear but all have one thing in common COPD you will find lots of useful information on hear

in reply to onamission

Thanks onamission, you are right even though we are all suffering with COPD we can all come together & share our daily problems together. P.S. Kind beautiful dogs onamission. x

onamission profile image
onamission in reply to

Thank you

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