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[bobhardy]

ive just been told I have fibrosis in my lungs I am 70 years old can you tell me how long this will take to kill me, or a estemete.

[Katinka46]

In a word, no. And neither will anyone else here. Lung diseases are highly individual, and we are not doctors. There are several members with PF and IPF. They will be along soon and will give you excellent advice. What this group is good at is sharing tales, giving advice and help on lifestyle matters but above all offering shedloads of support. It is good place to moan and groan, offload disgruntlement (good word!), and have a giggle.

All the best

K

[bobhardy in reply to Katinka46]

thanks for reply

[jabber]

I agree with Katinka. Everyone is so different, there are no rules or standards.

If you are in the UK you could phone the BLF helpline (03000 030 555) on Monday and speak to their expert respiratory nurses. I'm sure they would be able to reassure you and answer any questions you may have.

Welcome to the forum. We look forward to hearing how you are getting on.

Best wishes, Jan

[Hidden]

Hello Bobhardy,

I'm so pleased that Kate and jabber have responded. I wanted to earlier but didn't know what to say or how to say it because I just have copd. I do wish you as good a life as possible, with lot of special help and support.....and from others on here with the same condition as you.

[bobhardy in reply to Hidden]

thanks jen

[Hidden]

Hi I don't have this but my hubby does. He's had it 3 years and he is doing well he has not deteriorated much in that time. He has never smoked so that must help him. He's 71 and still works. Every case is different and no on knows how it's going to go. Best wishes.

[bobhardy in reply to Hidden]

thanks I hope he keeps going

[sibkev]

no i met a bloke who had it for 20 years its all down to the pearson

[bobhardy]

thanks sibkev

[sarcoid123]

Hello. I have had sarcoidosis of the lungs which is a form of fibrosis for 37 years. I am now 73. I have a friend whose diagnosis is pulmonary (lungs) fibrosis and she is doing well several years later. If you feel that breathing is getting difficult in the future do tell your consultant. If you are prescribed oxygen (I have used it for only four years) that is no bother really.

[Mollie01]

Hi Bob I too have pulmonary fibrosis diagnosed three years ago which is secondary to SLE. I am 58 and doing really well only a very slight reduction in the three years. I take mycophenolate and prednisolone and no oxygen at the moment. I try to eat well and walk as much as it allows. Do you have a Specialist Nurse attached to your Consultant - mine gives me great support. Support from this group is wonderful and when you need help they are there for you. Good luck. Mollie xx

[bobhardy in reply to Mollie01]

thanks mollie,you have given me some hope,that I will be playing golf this year,i was told I had pulmonary fibrosis two weeks ago the consultant told me to come back in six months,she never gave me any drugs, so from what you say I could have some good years to come, thanks for the reply all the best bob.

[Mollie01 in reply to bobhardy]

Glad I could help. You get out there and enjoy your golf. Best wishes Mollie xx