What sort of death to expect

[Lizzy1898]

Does anyone know what sort of death to expect when you have pulmonary fibrosis ? I know it's not a nice subject, but it weights on my mind

[sassy59]

Nobody truly knows Lizzy. I look at Pete and give grateful thanks for every day we have together living with sarcoidosis and COPD.

I wish you a good Christmas and peaceful new year. Xxxxx

[Hidden in reply to sassy59]

Well said sassy59 no body nows .so if you like me thank god for every day i wake up in the morning .and then i say thank you lord

[Azure_Sky]

In my experience, a dying person goes into an altered state of consciousness. They either go to sleep (with or without medication) or become calm and accepting as they pass away.

[sassy59 in reply to Azure_Sky]

Yes Christine our daughter in laws Nan went like that and it was very peaceful. Xxx

[velvet55]

Hello Lizzy

I am so sorry to hear that it worries you.

Be assured that when that time comes, you will be kept comfortable and pain free.

Try not to dwell on it, just enjoy every day as best as you can, embrace life.

xx

[Lizzy1898 in reply to velvet55]

Thanks velvet55 for the kind words xx

[Fennella02]

Many many years ago, when I was only 23, I became severely ill but no-one knew what was wrong. I was slipping away - the doctors knew it and so did I but I felt so unwell that I simply didn't care. I felt no fear or panic, I was in a very detached, peaceful state of mind. It eventually turned out that I had meningitis caused by a rare reaction to penicillin and the 'cure' was to withdraw the vast amounts of antibiotic they believed were keeping me alive.

[Lizzy1898 in reply to Fennella02]

Thanks Clareb67

[Jessy11]

Oh Lizzie, please don't worry yourself. You will be kept pain free & calm.

Speak to your doctor about your fears & he will put your mind at rest.

It's something that will happen to us all at some point, you know, it's an inevitable fact of life. It won't do any of us any good dwelling on it.

I hope you can relax & enjoy Christmas 🎄 🎅🏼🎁

[Lizzy1898 in reply to Jessy11]

Thanks jerssy11 . have a good Christmas

[Caspiana]

Hello Lizzy.

Honestly, I don't think anyone can predict what death will be like, even their own. It's like birth, quite individual and different with each baby. I believe death itself is not painful. There is only pain when it is caused by a disease or condition. I sometimes think about it too. But now I try and focus more of my energy into being as happy as possible for the here and now. And for all we know it may not be our disease that carries us away in the end. It could be anything.

Sending you a big hug.

Much love to you,

Cas xx 🌹

[Watfordgirl]

You've had some lovely answers, Lizzy. Nobody really knows but it's something we all share.

There's better understanding about care at the end of life than there used to be. It might help you if you made a Living Will so you can put your wishes in writing. You can change it at any time, as you can with an ordinary will. Then you can forget about it and think about living - and part of that is to have a Happy Christmas 🎄 and a good New Year! Sue xxx🙂 ✨ 🌟

[Twoose]

It's not something I ever bother to think about working on the principle that why worry about something that might happen in the future when I need to be enjoying life now. I think it stems from my mother being given months to live in her late thirtys. She actually died 50 years later. You might get run over by a tractor tomorrow so all that worry would be wasted time.

Take care and enjoy today happy Christmas

[Lizzy1898 in reply to Twoose]

Thanks Twoose, pretty sure it won't be a tractor , But I get your drift !

[Sonny22]

Merry Christmas Lizzy, I just live for today with one eye on tomorrow , when I awake each morning I try to fill my day to the max not always possible with IPF and PH but I give it a go, when first diagnosed earlier this year I thought that's it time up but as the months pass and with the help and advice from this site and family and friends I am more confident that I will still be posting this time next year God willing.

.To you and all mankind I wish a very Merry Christmas and a healthy New Year.

Sonny22

[Hidden]

You won't be struggling to breathe, if that's what you're worried about. I've been present at 4 deaths (2 lung-related, 1 heart and 1 liver failure.) All were calm and peaceful. The drugs used to help dying people have a significant sedating effect, you're likely to be only minimally aware, if at all.

[Lizzy1898 in reply to Hidden]

Thanks for your kind words . i will relax and enjoy my days

[Lizzy1898 in reply to Hidden]

Thanks hanna2

[Lizzy1898 in reply to Lizzy1898]

Thanks for your words

[Hidden]

Hi I agree with Hanne. They don't leave you gasping for breath these days and try their best to give you a peaceful and dignified death.

My mother was on a syringe driver her last few days and she was very peaceful. There wasn't much wrong with her except old age. Her body just wore and out when she stopped eating and drinking that's when they gave her morphine so she didn't suffer any pain.

A doctor told me the policy is to give everyone a peaceful and dignified death. So please stop worrying about it. Live your life for today and let the future take care of tomorrow. x

[ladytelita]

So many lovely replies but I know that fear of the unknown. Just remember that we are all animated by energy and energy cannot be destroyed. We just leave these shells behind and move on. Whatever your beliefs are you won't be left to suffer at the end of this life. So try to enjoy the life you are living now and make the most of the time you have. It is finite for us all so be happy, try new things when you can and explore. Keep yourself interested in new ideas and pushing your mind and you'll be surprised when you realise several years have passed.

Have a happy and comfortable Yuletide and look forward to 2017.

P.

[syble]

My dear Liizzy, do try not to dwell on it. I can only say that my darling husband died of IPF, it was so peaceful,he was fully conscious,not in any pain, he knew we were all saying goodbye to him, he just shut his eyes and that was it, try to think of happy things, it may not happen for many years, my best wishes to you, Bulpit

[Lizzy1898 in reply to syble]

Thank you syble

[bandit2]

I don't know if this gives you comfort, I almost died and it was the most wonderful experience ever, no pain, your body kind of lifts like you are leaving your body and low and behold my mom, nanna, brother and yes even my first dog, all who had passed were there with there arms out reaching for me. I felt no pain what so ever and I was so happy, I guess it wasn't my time as I am writing to you now but fear nothing there is only love waiting for you and no pain. Hope this eased your mind.

[Lizzy1898 in reply to bandit2]

That sounds lovely

[Hidden]

Hi Lizzy, that's one heck of a question that you ask, I try not to focus on around the time I'm dying as I always focus on positive things such as living life in a positive aspect, I'll tell you what do you have a living will or direct advance? This would reassure you that you have a smooth transition at your request, why are your thoughts are of death? Did the doctor tell you something such as planning on you're expiration? I was raised in a Catholic Church, what is your religion the reason why I asked you is because I believe in God my faith is great and because of that faith I continue to rise every morning until he calls me back to thedust where we all come from. Please allow me to advise you that you need to focus more on the present time and take it one day at a time simply go with the flow( please get that death thoughts out of your mind and I'm sure you'll be just fine.

[Lizzy1898]

Well I find it very hard to believe that there is a Heaven and a god, I wish I could but that's not the case for me, Thank you anyway.

[Rangitoto]

Hi Lizzy, it is two years since your question but is also something I would ask as I have just turned 80 and Have IPF. All the answers were wonderful. How are you now?

[Lizzy1898 in reply to Rangitoto]

Well Rangitoto two years have passed so quickly and I am doing pretty well, I have taken pirfenidone for 6 months over Christmas, but then had to stop because of my liver,

then I was prescribed OFEV, stated that in early March, still on it, has some side effects that are bearable ( nausea and diarrhea ) so I have given up worrying about dying

and concentrated on living . I am not getting breathlessness unless I walk fast or up a hill.

Tell me your story, I think 80 is not so old any more !