Starting my new treatment: Just been... - Lung Conditions C...

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Starting my new treatment

11 Replies

Just been prescribed relvar ellipta 92/22mcg today wondering if anyone knows much about it

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11 Replies
Nottobad profile image
Nottobad

Hi I have been on that for about 6 months I find it very good with no side effects. But everyone is different hope it suits you too.

in reply to Nottobad

I hope so do you know is it something I will be on for life or is it a short term treatment

Nottobad profile image
Nottobad in reply to

I think it is for life.

in reply to Nottobad

Thank you

M67W77 profile image
M67W77

It's the replacement for seretide which is no longer prescribed in my area. Had it for 2 months. So far ok.

in reply to M67W77

Tks

fourcandles profile image
fourcandles

hi I have been on ellipta 92/22 4 8 months and find I'm tired all the time a cough a lot thay changed from seritidexx

in reply to fourcandles

Did u find any benefits from using it at all I was given it after picking up chest infection I'm not sure what it is really meant to do tks

MoyB profile image
MoyB

I have found I have a low peak flow reading since stopping Seretide and starting Relvar. I have asthma, COPD and Bronchiectasis. I believe the Relvar is for the asthma. I also have Incruse which is for the COPD.

INK45 profile image
INK45

Hi Hidden, I've been on Relvar and Incruse for several years, but despite my pulmo doctor's insistence using two medications was too much of a nuisance, so I've been using only Relvar (without telling him). Had no problem whatsoever with Relvar (other than having to rinse my mouth every time), and it did improve my life a little, actually it does help both with asthma and with COPD, and it is better than any other COPD medication I tried over the years. At some point my GP tried to make me switch to Trimbow, but it made may hands shake tremendously, it was quite unsettling. So I thought I'd stick with Relvar. Hope it suits you !

I’ve just seen some of your replies to other people regarding what you’ve been given: Relvar is a combination, small particle steroid and long-acting bronchodilator inhaler. In layman’s terms, the steroid element suppresses inflammation in the lung tissue, and the bronchodilator helps keep the small airways open by relaxing the muscle bands, but it has a different mechanism and longer acting effect than the traditional reliever inhalers such as salbutamol (ventolin) etc. The small particle element just means it’s good to get right down into the smaller airways, so it’s particularly useful in conditions that effect the really small airways and cause wheeze or shortness of breath. I’m going to preface this next bit with a standard disclaimer that I’m not even remotely medically qualified, but generally speaking, from the knowledge I do have, I wouldn’t expect an inhaler like this to be prescribed unless there was believed to be an underlying respiratory diagnosis - do you have a lung condition? To prescribe it ‘just’ because you’re breathless after a chest infection (which can be fairly normal depending on the length of illness etc.) would strike me as a little bit odd, bordering even on overkill, as relvar is fairly ‘heavy duty’. Do you already have a relief inhaler?

To answer your original question, my daughter has been on the stronger dose of this for the last 6 months (184/22). At first I didn’t think it was actually doing anything more than her symbicort had (similar kind of dual purpose inhaler, just different drugs/mode of action), but we halved the dose to the one you’re taking during a hospital admission in August and quickly decided to put it back up again as she was increasingly breathless and the docs could hear wheeze on a daily basis. We’ve found it very effective for managing the small airway disease she has as part of her lung condition. It caused a little bit of vocal hoarseness to begin with, but many steroid inhalers do and we’ve always found it passes for her. The main piece of advice I can give you to avoid side effects is to rinse your mouth out with water after taking it to prevent thrush, gum issues and tooth decay: this is the same for any steroid inhaler. You should also wait to brush your teeth for at least 20 minutes after taking it, otherwise you’ll end up brushing the steroid particles into your enamel and gums and causing problems that way.

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