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No sleep!

Knicho profile image
23 Replies

I'm struggling to sleep at the moment I'm currently on steroids running them down now on 3 a day? Wondering if it's that or part of my condition? Does anyone else not sleep? I was coughing a lot last night but other nights I've just been wide awake..

Thanks x

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Knicho profile image
Knicho
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23 Replies
pergola profile image
pergola

I know that when I am on syeroids, that I find sleep difficult. I certainly have more energy during the day. X

diesel12 profile image
diesel12

I sleep very poorly when on steroids :(

O2Trees profile image
O2Trees

It's normal Knicho. Most people don't sleep, and some get quite manic - I do a lot of cleaning and house clearing when I'm on them. Box sets are good for getting through the night. Hope it turns around soon, and you WILL get more experienced at recognising when infection is hitting. Take care :)

Knicho profile image
Knicho in reply to O2Trees

Thanks.. I think I'm good at burying my head in the sand and need to realise that's not a good idea!

Hi. I don't sleep on steroids only 4hrs a night if that and I will eat anything that's not nailed down !!! When I stop taking them I sleep loads for 4 days then I'm back to normal. They make me really hyper as well. Best wishes xx

I feel great on steroids - for a few days! Then I have no energy or get up and go and feel very tired for a few days afterwards. Love the highs, hate the lows. x

Can't help Knicho - I just don't sleep......steroids or not. I'm used to it - never wait for sleep. I get up and do things that I enjoy.

Knicho profile image
Knicho in reply to

Been driving my hubby mad.. Need to take a leaf out of your book and get up and do something I think!

Thanks x

O2Trees profile image
O2Trees in reply to

PMA in the face of insomnia - I like it Jennifer :)

in reply to O2Trees

:-D :-D :-D

Knicho profile image
Knicho

Thank you ... I thought it was the steroids but as I'm running down expected to sleep a bit more! I'm also eating like a pig! Can't wait to be off them although the breathing and coughing is still awful so I imagine I'm going to end up having even more!

😔

Shirleyj profile image
Shirleyj

I have the same problem with steroids, I just can't sleep. I listen to audio books, so when I go to bed I plug my earphones in and I will eventually drop off, also if I wake up during the night I just carry on listening.

My advice is don't fight it, just relax and read or listen to music or audio books like me, you've got to take the little buggers and they will give you energy during the day.

Take care x x

Dove37 profile image
Dove37 in reply to Shirleyj

Love your reply at least we know that they do the job😁

MoyB profile image
MoyB

Oh dear! Join the club! I've been on steroids for three weeks and sleeping really badly. Am now down to 3 a day like you - can't wait to get off them for sleep reasons but they make my chest feel so much clearer that I also don't want to stop. Maddening, isn't it?

Dove37 profile image
Dove37 in reply to MoyB

The trouble with me is when I can take sleep I eat and don't seem to have control of the biscuit tin

MoyB profile image
MoyB in reply to Dove37

Aaah! The dreaded biscuit tin! It got me last night too!!

Dove37 profile image
Dove37 in reply to MoyB

Hi Joy b good to hear from you .My husband has got a very sweet tooth so i buy lots of goodies ,sweets etc which when i set my mind to it i can leave alone but when i am on steroids he doesn't have any goodies as i eat them all and feel awful after as i am struggling with my weight anyway😄 sorry i put joy instead joy i am not too clever with computer

MoyB profile image
MoyB in reply to Dove37

The steroids definitely give me the munchies! My COPD nurse said most people struggle to keep the weight on, not the other way around, so don't beat yourself up about eating your husband's goodies. You'll be back to normal soon enough! xx Moy

Dove37 profile image
Dove37 in reply to MoyB

Thanks Moy b

sarcoid123 profile image
sarcoid123

When I was on 30mg a day and took them in the morning I was still awake at 4am. I switched to taking them at bedtime and got to sleep reasonably easily. ( I took them a couple of hours later each day until I was taking them at bedtime.) I have been on 5mg for 10+ years and still take the tablet at bedtime.

Dove37 profile image
Dove37 in reply to sarcoid123

Thanks for your reply I have been to doctors today and I am back on steroids again and antibiotics also had X-rays and sputum tests (first time for me to have sputum test in thefew years I have been diagnosed with copd) so will try to take them a bit later.

Dove37 profile image
Dove37

I also don't sleep very well on steroids i sometimes get up and do some cleaning but after a few nights i feel overtired,plus the fact i eat all the time.The good side is they do their job

Dove37 profile image
Dove37

Started another course of steroids and antibiotics today after seeing the doctor I don't seem to have picked up since February .Hope you feel better soon .

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