The search for answers: Hi, I'm Keith... - Lung Conditions C...

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The search for answers

Clanger profile image
8 Replies

Hi, I'm Keith and have had copd/emphysema for years now. I'm on portable oxygen. I guess what I'm looking for are the little things we do in our illness that turn out to be "just right at that time" in my illness and made me feel well enough and not anxious enough to stop me doing the things I wanted to get done. All tips and suggestions are very welcome. Thanks.

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Clanger profile image
Clanger
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8 Replies
CDPO16 profile image
CDPO16

Just wanted to say hello, I too have emphysema but am not on oxygen. I hope you find the forum helpful.

onamission profile image
onamission

Hi Keith welcome life is difficult with our illness when I was first diagnosed I had a shocking cough I would cough so much I would go light headed which put me off going out. I had to do something so I started with short walks then built up to going shopping on my own

Pam1952 profile image
Pam1952

Hi Keith and welcome to the community. I too have emphysema and I find that anxiety is my worst enemy! I'm currently in the middle of a PR course, which I'm finding really beneficial (both the exercise side and the educational talks are invaluable).

I truly hope that you find what you're looking for on the site. There are some lovely members who have a wealth of knowledge and experience, and some who will just post things to brighten your day.

Wishing you all the best.

Pam 😊😊😊

Clanger profile image
Clanger in reply to Pam1952

Thanks Pam.

Anxiety is my worst too. I can accept breathlessness all the time but being anxious for something you can't even see really does get to me.

Thanks for the welcome.

Keith x

Jaynair profile image
Jaynair

Hi Keith, welcome to the site :) x

Dedalus profile image
Dedalus

Hello and welcome Keith

Catnip profile image
Catnip

Welcome, Keith :) Join the cylinder club!! I was given a "granny trolley" to use -- it takes two cylinders and rolls along behind me, saving humping the oxygen on my back. The trolley is a God-send!

All the staff at the respiratory unit which I attend says "walking is the best thing to do" -- and they are right. You need to walk, within your limits, then push it a bit. Coddling yourself is also good, especially when you're feeling low. Nowt wrong with that!!

Keep up the good work!

Catnip

casper99 profile image
casper99

Hi Keith and welcome to the forum. xx

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