Hi all, I'm not sure how many of you are aware but I'll give a brief summary and then an update . I'm 31 years old and was diagnosed with IPF nearly a year ago now, well to cut a very long story short I deteriorated very quickly and in may was placed on the transplant list for a double lung transplant. well over the past week I have deteriorated so much I am almost bed bound, i carnt go out as 15 litres is no longer enough for me. Newcastle are extremely worried now and are now trying ways of.even looking for.lungs of the same blood group but cutting them down to size as I am a very petite girl and lungs thats been coming thru have been too big or not the same tissue type. so really I'm asking for everyones prayers that they find me some lungs quick as I've been given months to live if I don't get them, I have a 7 year old daughter she cannot lose her mum.