Six1

[Six1]

Hi everyone got a ? Bout Prednisone I was taking 20 mg a day he said to start taking ,10 mg a day but when I did I was tired didn't have any energy so I started back to taking 20mg I feel better breathe better and sleep What yal think?

[O2Trees]

Hard to know what to think Six as you don't give much information - assume, when you say "he" that you mean the doctor told you to reduce the pred. You don't say how long you've been on it, or what condition you've got. If you are tapering and it's not going well you should get back in touch with the GP for advice. Halving your dose may have been too extreme and you might need to reduce by, say, 5mg. People often get some kind of a kick-back when they reduce and if you feel much more breathless on 10mg that might suggest tapering more slowly and gently, or even that it's too early to start reducing - Im not your GP so have no idea It really sounds like you need more advice and information to understand so please make an appointment.

[Six1 in reply to O2Trees]

@02Trees

[Six1 in reply to Six1]

Thanks I was talking bout my doc tapering me from 20mg to 10 mg I tried it but but I feel better when I take 20mg oh by the way I have COPD and sarcadois and emphysema pulmonary hypertension Need advice from EVERYONE,!

[ashmere4 in reply to Six1]

Hi six1 I am wondering why your gp has not sent you to the copd dept at the hospital,Ihave enferysema and my hospital see me every six months and my gp copd nerse I can call any time,ask a few questions good luck. Brian

[Foxy79 in reply to O2Trees]

Hi o2tree just wanted to say your Wright about preds you have ween it down if you find it hard to stop 5ml a week do 1ml a week Wright advise or go to GP if not your reds nurse there's soo many advises nd help you can get out there take care foxy

[Hidden]

Can't possibly give you any better advice than 02Trees, so get your appointment made, put the questions to your doctor and then he will explain to put your mind at rest

Good wishes,

[sibkev]

1 pred can give you catrax i know ive had two eye done cus of it 2 pred can give you diabetise for give spelling i know i have that to the tired feeling is withdraw from drug try droping it by 2.5 mlg a week it wont hit you as hard but get pred down the less the better also it will help with weight . at one point i had to drop from 60 mlg to 15 that was a fight ill tell ya

[joyce74]

I have a GP appointment on Tuesday to discuss reducing the amount I take over a longer period as suggested by a respiratory nurse. I started a new batch last week and taken 4 per day (20mg) instead of 30 mg. (6) seem to be suiting me , not disturbing my sleep as much.

[Shaurene]

Prendison in my opinion worst thing you can take. Have Broncitis so many times and they put me onto this. 1 week 2x 5mg 3 times a day then 2x 2 times then 1 per day. Pretty long term. It has weakend my whole system. Hard to sleep, sweating, swollen feet/legs eat a lot. Have now stopped it completely on my own decision and am starting to feel much better in my body.

Read up on it, Mayo Clinic USA will really frighten you. It is the type of Steroids.

Other stuff you can get.

[Six1 in reply to Shaurene]

Shaurene Thanks will contact Mayo Clinic

[PollyP]

Six1 Please take advice from your doctor re. dose and tapering reduction.

Oral steroids are powerful and a great help with certain health conditions as most of us know!

However, they can also bring a load of trouble with long term use!

Such as long term dependency, cataracts, glaucoma, bone loss, loss of muscle tone, loss of bone, diabetes, and more. Rapid reductions can cause psychosis.

Please don't fiddle/meddle with the dose without medical supervision.

Have a great day.

[Six1 in reply to PollyP]

#Pollyp you're😄seriously I'm going to talk it over with doc 20mg makes me feel better than 10mg Thanks

[Shaurene in reply to PollyP]

Hi Polly. Yes should always talk to you Doc but a lot of Doctots take what the Pharmas say.

Last time I was back in New Zealand in Jan/Feb this year. My doc did blood test and very concerned my blood sugar high. But he never said one time about the courses of Prednisolone he had me on. Why! Why. When all the evidence is factual on the Net.

I have. Cut down slowlly now. My blood readings with my test meter been showing 15- 22 many times. Since cutting down it is showing from 5.4- 7.5 many times and I do not feel so tired and am sleeping better.

My legs are getting stronger. In the hospital in Thailand the doctor told me straight my high blood sugari was caused by the Prednisolone

I found it very educational. Going onto Google "Prednisolone" So many top known Hospitals and Doctiors all over the world, giving you the down to earth facts.

[PollyP in reply to Shaurene]

Hi Shaurene,

I do agree that it is really helpful if we understand about our condition and the medication we need to take to keep us well.

Steroids-Prednisolone is a powerful medication as you know, it has the power to help us get well and it has the power to cause other issues too.

I became steroid dependant this year and yes I too developed steroid induced diabetes....what a pain!! Reducing 1mg a week and now down to 3 mg, blood sugar levels are going down, but wether it will be possible for blood sugar levels to go back to healthy levels I don't yet know.

I take calcium supplement to protect my bones and have had to see the Oral Maxillofacial docs for the terrible candida in my mouth. So more problems from the steroids than from my lungs!

Longing to be finished with the flipping things!

Keep well and happy!

[Foxy79]

Hi my name is foxy and I'm :5years of age I have copd and type 2 lung failure anyway I was 50mg for 5years it did help me lot but side effects are it makes you blowete same happen to me cause of my socialist no1 reviewd my meds and I didn't stop till know it's hard cause consequence is far great so I'm reducing by 5ml a week till 10ml then 1ml a week plz do it slowly and if you take it regular when you get chest infection you won't have enough meds to help or dose. thanx

[Six1 in reply to Foxy79]

Foxy79 Thanks glad to meet you I guess I'll take em like they say. But 20mg sure make me feel better than 10

[Foxy79 in reply to Six1]

Hi six1 just wanted to say check all side effects and what it's gonna do for u before taking trust me it's very hard getting off preds I'm still on 7ml and been on it few years makes you put on weghiet badly very hard to life with take care foxy

[bayleyray-uk]

Hi Six1,

Please discuss this with your doctor, Preds can be very helpful in cutting out inflammation so you will feel you can breath easier but you have to weigh out the consequences of regularly taking a higher dose by what problems they can cause in the long term. I agree with PollyP & 02trees be guided by your doctor. I have been on a maintenance regime of 10mg a day for nine months now and it has helped me function better but at a cost my consultant was very clear what could happen in the long term.

Cheers,

Sue

[Six1 in reply to bayleyray-uk]

bayleyray-uk Thanks I will discuss it with doc

[Six1]

#SueThanks Sue I will do that☺

[TEDTHEBEAR]

It sounds to me like the steroids have caused adrenal gland fatigue. This happened to me. The glands become dependent on the steroid so stop working but don't start again when you reduce the steroids, so have to. go back on them. You need to get a short synathacen test done to see what your adrenal glands are doing. I have to have them permanently because of this, but now have diabetes because of them.

I find cutting out sugar in my case as helped an awful lot, especially as I also get depression because of my broncicatasis and the dreaded steroid weight gain. I like sugarnono UK.co.UK, for this, they have free sugar free recipes, and treats. etc.

Please get your doc yo check your adrenal glands its more common than you think, its only 2 blood tests and an injection good luck.

[Six1 in reply to TEDTHEBEAR]

TEDTHEBEAR Thanks will do that u guys give such good advice😃