"IPF kills 5,000 every year – but you’ve never heard of it".

[Biddy_ALUK]

These blogs, all on our website, are helping us raise awareness of IPF during IPF Week.

Please read three very different inspirational stories about living with IPF, from three amazing people.

blf.org.uk/your-stories/ipf-kills-5000-every-year-but-youve-never-heard-of-it

Regards,

Biddy

[mrsmummy]

Truly inspirational. Thanks Biddy.

[Hidden]

I was reading blog about IPF suffer and defo brakes your heart some storys

Was 39 year old girl with a young family and i was shocked to read she thought she was going to get better and return to work.

Am not into braking hearts but if how devastating is kept secret how can things change.

Sure this lung transplants if lucky but rejection drugs can cause cancer and sepsis

Lung dieases really dose suck but only as much as glossed over information.

I know its uncofatafbble having conversations like that BUT how will things change if everyone thinks its ok

When i talk to my doctor i want him to feel as bad as me as this nothing nice about any of it.

I dont want to be regarded as next customer

[Biddy_ALUK Partner British Lung Foundation in reply to Hidden]

Hello,

Thanks for your response.

You're right, knowing the facts is part of the process of coming to terms with a diagnosis of any condition.

We hope that our approach is helpful, honest and supportive.

You know where we are if you have any questions.

Best wishes,

Biddy