I am so grateful for the last eight hours where I have found so much support for this condition than I've had in the last 10 years. Thank you to each of you that have given me information (which I've already forwarded to my doctors). I am trying not to be critical of what hasn't been done and just thankful for what I know now. I want to move forward. You have given me hope.......thank you.

7 Replies

  • 10 years so sorry to hear thats how long you have been ill it was the same time for me before my transplant i had ipf i dont know what you have but i pray it gets sorted soon

  • I was left floundering for just one year and that was bad enough. I thank God for the British Lung Foundation and the Breatheasy group as that's where I got sensible information and found out what should be going on for me so I could ask the doctor for what I needed! We shouldn't need to find this all out for ourselves but at least people on this site understand and can offer help when the medics let us down.

  • YES sometimes too little too late ... my Doc does NOT have a clue, in face now if I feel 'not right' I take myself to my local hospital, at least they know my name ! .... Hope you improve by the day x

  • You too!

  • Thank goodness for BLF and HU I say. Now you can get things moving - 10 years is a long time to be in the dark. We are always here in one form or another . Let us know how you get on.

    Very best wishes,


  • My sentiments exactly Jennifer...xx

  • And mine.

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