Hi folks i hope today is being kind to you health, its been a while since ive logged on ive been off-line for some time but i'm happy to be able to read your posts and find comfort knowing that i'm not alone living with this awful disease (stage 3 COPD diagnosis-2010)
Since my diagnosis i persevered with work as much as i could until i began to slow right down to the point of falling really ill resulting in a left lung collapse. I am 44 years old and (or i was) a self employed Joiner/Carpenter/Cabinetmaker and a very proud one at that. Its been 3 years since ive worked now and just over a year ago my savings were gone and for the first time in my life i applied for benefits.
After speaking to citizens advice i was put in touch with a great person from welfare rights who was absolutely brilliant, she came to my home and after i dug out all of my work records N.I contributions, tax records and diagnosis details she assured me that i was entitled to range of different benefits and helped me fill in all the relevant forms.
After various medical assesments and a few months down the line i was finally awarded these payments including back payments, which my welfare rights worker said its what i deserve,she bent over backwards to sort that out for me and to whom i'm hugely grateful. Although my health condition did'nt improve the quality of my life certainly did been able to get a fulltime carer and able to afford decent quality food and loose fitting clothing and internet connection which is important as i am basically house bound.
One year on and following a recent medical assessment the DWP have decided that i no longer qualify for these disability payments even tho my condition has worsened since last year, ive lost my carer and depts are mounting.my welfare rights worker is disgusted ive had to request a mandatory reconsideration before i can appeal,which apparently no one ever gets and takes months. i am usually pretty good dealing with stress and anxiety but its out of control now and having a knock on affect on my illness. all my working life paying into a system which is supposed to look after you if you fall ill,get old or both has just shafted me.
is there any readers out there having or had the same trouble i'd be interested to know how you got on with it.
Thank You for taking the time to read this