Doctor called early this morning to tell me the team that he presented my results from my recent bronchoscopy with biopsy, couldn't all come to an agreement that what he thinks I have, (Bronchiolitis) is what I have going on ugh the frustration is heavy at this point guys. I've been unable to breathe normally since Oct 6th (yes I remember the DAY all this started) anyhow, his news continued with at this point, he is recommending a surgical biopsy at this point. As I just wrote a couple days ago, during my last procedure my right lung collapsed. He was honest with telling me that it will be collapsing again for sure. Can anyone tell me any other high risk or dangers I should be prepared for? They make it seem like it's easy and common, but I'm scared to death. He also told me that this is the point we are at, to figure out what's going on with me. That if this surgical biopsy doesn't give a answer, he is lost as to what to do next.
I'm now on oxygen at home while active (basically anytime I'm up and moving) because as I've mentioned before my OX numbers drop in the 80's.
I just had my 39th birthday.. And I can honestly say, I pray my 39th year is better than my 38th. All I hear is whatever I'm dealing with, is "rare". Today he told me that with my age, if it ever comes to it, I'd be someone easily considered for a lung transplant. My family couldn't believe without a definite answer to what I "have", he shouldn't even be talking about lung transplant! You guys agree?
You reach a point where you just feel so discouraged
Guess I need advice... Do the surgical biopsy? Hopefully that hold what "rareness" I'm dealing with?
Sorry so long.. Sometimes we just need to vent.
Ps. I live in Michigan USA,
And am currently being seen at university of Michigan hospital..