To those who have COPD: Let me just... - Lung Conditions C...

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To those who have COPD

jinsummer01 profile image
25 Replies

Let me just share this experience of mind the moment that i was diagnosed with COPD im only 27 years old and it was just last year that i found out about this. I was shocked, i panic, i was depress and lose hope i thought it was the end of everything. Before i always wanted to be rich but then all I ever wanted is to grow old. But then found out that COPD is manageable and we can also make it stop, then i did make a healthy living and proper exercise and i feel better now. With that i realized that it is just God's tap on our shoulder asking to take care of ourselves more and giving us another chance to live. I know that i am going to die someday so as everyone but not with COPD because with proper healthy living I can surely beat the ass of this COPD. I hope i made you feel better. Do the same and i promise it will stop :) Godbless you all.

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jinsummer01
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25 Replies
piping profile image
piping

PLEASED YOU SO POSITIVE....ANYTHING POSITIVE IS GREAT.yOU DIDDN'T STATE YOUR STATS?

PastMeBest profile image
PastMeBest

Hi jinsummer01 a very warm welcome to our community. I hope you will make many new friends and find any support that you need here.

I am so sorry to learn that you have been diagnosed with COPD at such an early age. I can understand how you must have felt when you were first told. All the mixed emotions flying around inside your head take some getting used to. Thankfully someone must have given you some good information that COPD although a progressive disease can be managed with the right care. Exercise, diet, medication all play a part in managing your condition but you have something else very important that will help you a great deal and that is a positive attitude.

With a positive attitude you will be looking at all the positive things that you can do to help yourself rather than dwelling on the negative aspects of having COPD. I was initially diagnosed with Idiopathic Pulmonary Fibrosis which like yourself came as quite a shock. I have also been diagnosed with COPD/Emphysema (mild) but likewise I too have a positive attitude and concentrate on what I can do not what I can't. I can still do most things it's just that they take longer to do.

I enjoyed reading your post and am sure it will give hope to others newly diagnosed with COPD that it isn't the end of the world and encourage them to manage their condition as best as they can.

It would be good if you told everyone a bit more about yourself and your condition.

Please feel free to ask any questions you might have. There is usually someone about that is able to help.

"Thank You" for sharing your story.

Regards. John

jinsummer01 profile image
jinsummer01 in reply to PastMeBest

I was really depress before but the moment that i found out how to manage COPD it gives me hope and it makes me love myself even more. I even talked to people with the same condition and i was suprised that they are still alive after 30years and still doing good, then I realized that COPD can never stop me living a long life

Sykesy01 profile image
Sykesy01 in reply to jinsummer01

May you live to have old bones. All the best. Ian😎

jolaine75 profile image
jolaine75 in reply to PastMeBest

Dear John

I too suffer with COPD, mine came on late in life when I was 73yrs old, I am 75 now and yes I have felt really yuk sometimes,and I have to use puffers night and morning, and carry one around with me during the day. My COPD came through Passive smoking, my late Parents were smokers, and I must have had a weakness because when I was 13yrs old I was in hospital with Pneumonia . I have got into a routine with my medication,and yes I have had infections that flare up, when I have to increase my medication and I also take an antibiotic 3 days per week that helps and medication for the buildup of mucus.

In the last year I have been informed that I have crystals in my joints, and Fibromyalgia Arthritis and Osteoarthritis. Of course my medication has increased. But one has to be positive, I know that being told you have COPD is quite alarming,but get yourself into a routine and you will find you will be helping yourself to keep the COPD in control

wishing you well

Irene

PastMeBest profile image
PastMeBest in reply to jolaine75

Hi jolaine75 sorry for the delay in answering. I somehow seem to have missed your reply in my notifications.

I am not certain whether you are answering jinsummer01 or my reply to him.

You seem to have a good understanding of your COPD and are managing it quite well. You also have a good positive attitude which is very important. Some people tend to dwell on the negatives of their illness and all that tends to do is drag them down into depression.

Both myself and my wife take lots of medication but we have a routine of sorting it all out ready for the week ahead. I am very forgetful so have an app on my phone that reminds me when to take it.

I am sorry to hear that you have also been diagnosed with Fibromyalgia, Arthritis and Osteoarthritis. I suffer with Osteoarthritis myself so know how you must suffer with pain at times. Fortunately I don't have Fibromyalgia but I have friends who suffer really badly with it. Not a very nice thing to have.

I wish you all the best Irene.

Regards. John

Towse1950 profile image
Towse1950

Young head on old shoulders....we would say. So glad you realise it's a wake-up call. You now seeing a purpose to life and appreciating each day is refreshing. Hank you for sharing.

Audrey Jersey

onamission profile image
onamission

Hi and welcome to our site your very young to have copd I was 42 when diagnosed and like you went down the road of keeping fit. For 3 years I stayed the same but then got the flu nd we never recover but I still go to the pool every week and do a bit.

keep on the path and I'm sure you will live till your old

jinsummer01 profile image
jinsummer01

Im in mild stage and yeah it was shocking at first but then i realized that it was a wake up call. My dreams fell apart the day that i was diagnosed because i am too young. But now i live normally, im working and enjoying my life to its fullest. I know this is uncurable but my primary aim is to make it stop and my target age is 70 :) its just a matter of how will you take care of yourself.

Oh my goodness you are very young to be diagnosed with COPD. Is there a genetic link? At mild stage though you have every chance even at your age of still living and having great quality of life for many years to come. Well done for your very positive attitude.

Welcome to the site. x

jinsummer01 profile image
jinsummer01 in reply to

Alpha 1 i guess it runs in our blood. And yeah i still have a long life ahead of me so as everyone who are diagnosed the same, though its progressive it is still manageable and it may stop its just matter of how you will u live your life :)

in reply to jinsummer01

You are very unlucky jin as this is relatively rare, but congrats on your very positive attitude. x

guytane profile image
guytane

its all about breathing and not eating processed food meat lots greens fruit breath in slowly to a count of 8 hold for 8 seconds breath out slowly then at end of the breath hold again 8 seconds then breath in slowy repeat for 5 minets then as you get better you will notice you can do this exercise for longer ie 10 seconds etc opening your lungs and makin them stronger more lungs mean more oxegin as we only use 20 per cent of our lungs

jinsummer01 profile image
jinsummer01 in reply to guytane

Noted. Thank you so much :)

sukee52 profile image
sukee52

I was 16 when I was first diagnosed, and the specialist thought I had had the illness for some years before that, I am now in my 60's so I agree with you 100%, the doctor says I am v lucky and I agree with her too.

jinsummer01 profile image
jinsummer01 in reply to sukee52

16 you are diagnosed with COPD? Oh my God you are a living proof that we can live longer. You are such an inspiration thank you so much :)

ditowler profile image
ditowler

Love your positive attitude. I was diagnosed 2 years ago, I go to the gym 3 times a week, walk a lot, do housework every day, eat well, don't smoke and watch my weight. My blood oxygen levels are 98%. I just try to live a normal life and enjoy it😊😃

jinsummer01 profile image
jinsummer01 in reply to ditowler

Same here i go to gym 3times a week :) what stage are you?

ditowler profile image
ditowler in reply to jinsummer01

I am stage 2 I believe, I foolishly kept smoking after my diagnosis because I felt so well, anyway quit 3 mths ago and decided to treat it seriously. I feel pretty good right now and I am very active 😃

casper99 profile image
casper99

Hi Jin and welcome. Yes, you are young to be diagnosed but, your positivity, will serve you well.

You also are young enough to reap the benefits of the huge amount of research and new treatments that are and will be around in the future.

You've certainly cheered me up with your optimistic post xx

SquirrelsHolt profile image
SquirrelsHolt

You gave such a positive account of your diagnosis. Well done you and thank you for sharing Jinsummer01.

mancityfc12 profile image
mancityfc12

What a lovely person you are. A very true statement.

nicksmith profile image
nicksmith

Can a pensioner claim a Benifit for havingCOPD?

Raptorabz profile image
Raptorabz

Welcome Jinsummer01, join the club, there are a lot of very knowledgeable people in this forum and you'll get a lot of good, advice. Keep up the good spirit, I myself am also new to copd and I am still doing most things but slower. Anyway will be 68 soon and I have enjoyed restoring many classic cars and owned them, now I find that it's a bit difficult for me to go under the car and slide out as I used to be. I am still fixing my cars and enjoying flying RC model airplanes. Take care, many new medicines will be out and we can hope for a cure .

Warmest Wishes,

Raptorabz

twilliamson profile image
twilliamson

Were you ever a smoker jinsummer01?

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