Lung denervation

[Gilly2235]

I am the lady in the Daily Mail today. It really is a miracle!! I can now do things that I would not even try before, like going to a Supermarket, walking down the road etc. I did have a few side effects, but most have gone and the remaining cough is subsiding. Would definitely recommend you find out if your suitable.

[Mandy6513]

Wow is that you !!!!

I do remember reading a reply you sent to someone about a procedure you had....Can you tell us more

[Toci]

I am really happy to hear that this worked so well for you. I was also turned down for the valves because of my emphysema being too widespread. It gives hope to us all. xx

[Polly4acre in reply to Toci]

I read this myself , Gilly, and marvelled at it. I immediately wondered who that brave lady was. How great to hear from you! Best wishes for an ongoing improvement, please tell us how you are from time to time.This is a big message of hope for everyone, thank you so much. Polly x

[201251]

Hi. I've just read the article. Amazing!!!

Still lots more trials to do yet but it's looking good. Glad you're feeling better. Kath.

[casper99]

Hi Gilly, I felt a huge rush of optimism when I read the article kindly posted by Jabber.

Only being moderate at this time, I am fortunate enough, to not yet know how awful it must be, to be truly gasping for breath.

I can only imagine how wonderful you must of felt, just being able to breath better.

I have read of a couple of very promising trials lately.

One, is a powder that ensures full delivery of all inhaled medication, resulting in much better dialation of lung tubes. (Forgot the proper term.) and therefore, causing less side effects.

The other, was basically, the discovery of the (Trigger) that causes the narrowing of the tubes and hopefully, being able to switch it off, halting further lung damage.

So, I was already feel much more optimistic for the future.

But, this treatment you've had, is here, tried and tested and best of all, appears to be going to be more widely available to lung sufferers than say, valves, which are sadly, unsuitable for a lot of people.

I wish you the very best for the future and thank you so much for being brave enough to take this trial. xxx

[Hidden]

That's amazing you have joined us here. Tell us more please. x

[hufferpuffer]

It's lovely to meet you I'm so pleased you are doing so well that's fantastic!😁 huff xxx

[Titchy52]

That's amazing news so happy for you a new lease of love best wishes Kathy x

[junespoon]

I what was it you had please I have very bad emphsema, 9 valves in left lung which helped, just come out of hospital for 8 weeks phumonia, fluid on lungs and sepsis. Only went in with a pain in tummy. On oxygen now hate it won't go out with it on, so life is restricted. So would be lovely to hear what you had done and where. All the very best .x

[caroleoctober in reply to junespoon]

Hello Junespoon, please don't restrict your life as you are. I am on oxygen, have been for five years, but I go out at every opportunity, either in the car or on my mobility scooter. Nobody notices the oxygen and the only ones who comment on it are children who are curious so I always explain that I have poorly lungs and that it was caused by smoking in the hope that it will put them off the evil weed. Please go out and about, it makes life more enjoyable. Keep smiling

Carole x

[Toci in reply to junespoon]

I totally agree with Carole, junespoon. Having used oxygen for nearly 9 years I feel very odd when it is not on my face. We humans can get used to anything. I get curious looks from children sometimes but just smile and say 'it is helping me to breathe' and they are satisfied and turn away. It is only curiosity at something they have never seen before. You will find that the more you go out the easier it gets as you get more used to wearing it and folk get more used to seeing you with it. Please don't restrict your life the way you are doing. Get out there and live. xx

[Parvati]

Congratulations! Could you perhaps share your old and new Fev1 and/or FVC figures with us so we can compare?

[sassy59]

How wonderful and interested to hear more. Xxx

[KD12]

I posted that Daily Mail articles a few minutes ago, sorry I didn't know the main star featured in the article, Gilly2235, posted something about it here already !

Glad it worked so well for you Gilly

Take care.

[Colours23]

Yes please exactly what I could do with,I'm so fed up with living like this,no other help,if I can't get help then I will pay for private treatment. Thanks for letting me know,it's the only thing that gives me hope to carry on,useless the services where I live,Nothing at all,I am severe very severe,yet I still have to threaten docs with 111 or hospital just to get inhalers on time,I manage my own health....Joke!

[Gilly2235 in reply to Colours23]

This treatment is only available on the NHS as it is a trial. Ask your GP to refer you to the Brompton. It takes time but is worth it. good luck.

[Maximom in reply to Colours23]

Colours, I order my inhalers online and though I collect myself neatly all the pharmacies here deliver meds to the home without any cost...

Have you tried our local breathe easy group. I've not been myself yet but they are good contacts to have and help provide a support network.

[Colours23]

Yes I could go if I could get there,but I am very wary of it as its in a public swimming pool,not a good area, long way,I would struggle to much,so I am walking in my area which is lovely near the sea.so I'm happy with that,but miss the contact with people and info that I would be grateful for.

[Storm1949]

Hi Gilly2235 so glad the treatment has worked for you would love to learn more about it.