Pulmonary fibrosis and Cellcept

[Mfeex]

Hi again. Thanks for all of the responses to my first post. Forgive all of the questions but here comes another one. In addition to COPD, my mom has non-idiopathic pulmonary fibrosis. (sjogrens) Is anyone here taking Cellcept for fibrosis? She has been increasing her dosage for about 2 months now. I would like to hear opinions from others here.

[Northernfi]

Hello. My husband has NSIP and is on Cellcept which goes under the other name of mycophenolate. He has been on it for Just under a year, and as when he was diagnosed in February last year he was only given a few months to live, I can only think that this and the prednisolone must be working! He is also on oxygen 24/7. I think it's because of the Cellcept that he has a monthly blood test which is to make sure his kidneys are still working (and probably other stuff too). He has not had any problems found in any of the blood tests, so hope that continues. Hope that the medications your mom is on are helping her.

[Carolined]

I have been on Cellcept (Mycophenolate Mofetil) for over 7 years. I have Pulmonary Fibrosis/NSIP. My initial dose was 3g per day but now take 2g as the higher dose was allowing me to get infections. I believe it is a bit of a balancing act with this drug and pulmonary fibrosis as the drug suppresses the immune system to control the disease but then can allow infection which pushes it forward! Initially it made me feel very sick so I had to stop taking it and then start again with a small dose and increasing gradually over a few weeks. I now also take an anti sickness drug which does the trick.

[Mfeex in reply to Carolined]

Which med do you take for antisickness?