I am actually going to Rehabilitation in September, that is the earliest they could get me in, but I have heard that it helps a lot. I am exercising twice a week at classes nearby, and although I am always out of breath, I do enjoy it. I hope also that I can have a holiday in a few months, but I will have to find out first. Does anyone with this disease actually go away? I do miss my holidays ha! ha! Thank you for replying as it does help to talk.