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Nanny1086 profile image
61 Replies

Well I don't know where to start really ,,,,,but here goes ,,,,I was asked by the COPD PR nurse that mainly takes care of my health if I would go to  a meeting  with her to discuss pulmary rehab and how it's benefited me over the years ,,,,,of course I said yes of course I would ,,,so today was the day ,,,,,,WOW I was not expecting what happened next ,,,I entered the room ,,,,,,where approx 20 people were sitting around a board room table ,,,,,there were 2 empty seats and 2 decanters of water on the table in front of these 2 seats ,we took our place at the table ,,,and I was asked how I would like to be addressed ,,,,,Georgina will be fine ,,,I squeaked out ,,,,,I looked Sarah ( the COPD nurse ) with a look of , ,,,,,what am I doing here ,,,,haha,,,,,,Sarah was asked about her role in PR and what she thought the benefits were ,,,,,at this point she said " well let's ask someone who knows first hand the benefits " ,,,,all eyes were on me ,,,,,and I was soooo nervous ,,,but once I got started I was got into full flow ,,,,I explained how once you've done the PR ,,,,you are taken under their wing and they take care of your COPD ,,and how they are only a phone call away ,,and their aim is to manage my health in my home rather than going into hospital ,,unless of course hospital is where I need to be Sarah Was asked many questions about wether it's financially beneficial to have this service ,,,and she put a strong message forward to the board pointing out that for instance in  Georgina's  case she ( I ) would have spent many more weeks/months  in hospital over the years ,,without the COPD service provided ,,,,,,I won't go on any further as I've told my story on here before ,,,,,

Anyway ,,,,we were thanked for attending the meeting and  for putting a strong case for COPD & PR ,,,,,we left the room ,,,,,where Sarah then pointed out that we had just been speaking to the NHS TRUST SOUTH ,,,,,,,,,and she said she was very proud of what I'd said and the way I put my opinion across strong and positive ,,,,,,needless when we were back in the car I was ,,,,,releived ,,,,,, the meeting was recorded and photographs taken so if I get a copy ( IF ) I will post it on here ,,,,,,relieved to be home ,

But ,,,,

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Nanny1086 profile image
Nanny1086
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61 Replies
mikeadams51 profile image
mikeadams51

Well done nanny. Sorry dont know your real name.

Nanny1086 profile image
Nanny1086 in reply to mikeadams51

Georgina ,and Thankyou ,

y_not profile image
y_not

Nanny, you are my expert already - now the NHS Trust South expert also!

Will you autograph my Flutter now that you're famous ... today the NHS Trust South ... tomorrow the world!

Well done, I hope they learned as much as I have from you!

Nanny1086 profile image
Nanny1086 in reply to y_not

Haha your toooo kind ,,,,,experience gained through illness and great care ,,,

Parvati profile image
Parvati

That's great Nanny! May it be just the start of your patient rep activities - COPD needs people like you ;)

Nanny1086 profile image
Nanny1086 in reply to Parvati

Thankyou ,

tbeth profile image
tbeth

Impressive! I hope you get a copy to share.

Nanny1086 profile image
Nanny1086 in reply to tbeth

Thankyou ,so do I ,

Snodgrass profile image
Snodgrass

Well done you. Rehab is amazing but to speak at a Board Meeting with no warning is amazing too!

Nanny1086 profile image
Nanny1086 in reply to Snodgrass

And terrifying ,,,,,thank you ,

sassy59 profile image
sassy59

How great Nanny, well done. Xxx 

Nanny1086 profile image
Nanny1086 in reply to sassy59

Thank you sassy 

velvet55 profile image
velvet55

⭐Well done Nanny⭐

You are a star, and our PR representative.

What a scary experience for you...good job you didn't know what to expect, you would have spent days worrying about it.

As it was, you spoke from the heart ⭐

xx

Nanny1086 profile image
Nanny1086 in reply to velvet55

Velvet that is soooo true ,,,,I said to the nurse later ,,,,if I'd know I would have made some notes to remind of what to say ,,,,,,,that's why I kept you in the dark ,,she said she wanted me to just tell my story ,

velvet55 profile image
velvet55 in reply to Nanny1086

And it worked didn't it...clever lady your Nurse.

We will give her a star as well ⭐

xx

Sheilab123 profile image
Sheilab123

Wow Nanny what a day! It's certainly one you will remember, well done you! The more our lungs are talked about the more action we should get, great stuff! Xx

Nanny1086 profile image
Nanny1086 in reply to Sheilab123

Exactly ,the COPD nurse is hoping that they may get another nurse to add to their team from this meeting ,,,,fingers crossed for them they are run off their feet,

Titchy52 profile image
Titchy52

Nanny1086  well done you should be very proud of yourself because there lots of people waiting to get the help you've received from the pulmory rehabilitation unit me for one x

Nanny1086 profile image
Nanny1086 in reply to Titchy52

Don't give up ,push for a referral  honestly I wouldn't be here now if it wasn't for them ,,,,I hope you get seen soon ,

Titchy52 profile image
Titchy52 in reply to Nanny1086

My doctors referred me but there's a waiting list so fingers crossed it wont be to long x

Nanny1086 profile image
Nanny1086 in reply to Titchy52

Good luck ,

Tee1008 profile image
Tee1008

Very well done, our orator!  Your nurse obviously recognised a talent there 👏

Tee x

Nanny1086 profile image
Nanny1086 in reply to Tee1008

Thankyou ,

Azure_Sky profile image
Azure_Sky

How brave of you, keeping your nerve in front of all those people.

Nanny1086 profile image
Nanny1086 in reply to Azure_Sky

It was scary ,,,,,but I thought ,,,,come on girl your age 70. You've been through more than any of them ,,,so don't miss your chance to tell them ,,WE NEED THE COPD NURSES,they're life savers ,hope they got the message ,

Heidibutcher profile image
Heidibutcher

Well done, you have done such an important thing, I know as I work for Healthwatch and every area has a local Healthwatch, patient stories are extremely powerful and what you did gives commissioners first hand evidence of how patients benefit from services, services need to be designed by those who need and use them not by people in offices which has always happened

Heidi x

Nanny1086 profile image
Nanny1086 in reply to Heidibutcher

Couldn't agree more ,,,,one of the nurse team is called Heidi and she is lovely ,,,,and some useless information  for you ,,,Heidi and Heidi grows up were the books I read over and over when I was little,,Thankyou ,Georgina x

velvet55 profile image
velvet55 in reply to Nanny1086

Hi Nanny

I read those books, and Mallory Towers, and of course the Famous Five

xx

Nanny1086 profile image
Nanny1086 in reply to velvet55

Loved famous five and the secret seven ,,,,, I've still got my original Heidi book it must be over 60 years old ,,,,something to pass on to my Grandaughter ,,,,,I used to read it to my daughter when she was little ,,,,and to my Grandaughter 

clematis5932 profile image
clematis5932 in reply to Nanny1086

Heidi what memories was there a grandpa and a goat in these stories please.

Nanny1086 profile image
Nanny1086 in reply to clematis5932

Haha yes your right And Peter who was Heidi's friend ,he helped her grandfather look after the sheep,on the mountains ,and he eventually bought her back to her grandfather from the city ,beautiful simple story ,

clematis5932 profile image
clematis5932 in reply to Nanny1086

I had forgotten Peter but now I can see the pictures of them all in my minds eye, I to used to read them over and over just a very long time ago.

Billiejean_2 profile image
Billiejean_2

Well done G !

clematis5932 profile image
clematis5932

Well done I am a great believer in the respiratory nurses at home service, mine are just a telephone call away and can access my consultant at any time should they need advice,  in fact they have regular meetings with them to discuss patients under there care.  I believe that in the long term they save the NHS a lot of money as well as saving us from having to go into hospital.

Nanny1086 profile image
Nanny1086 in reply to clematis5932

My point exactly ,,I hope I put it across 

peege profile image
peege

Good for you nannyG. 😃

Nanny1086 profile image
Nanny1086 in reply to peege

Thankyou 😊

mmzetor profile image
mmzetor

well done i can now see why you said you had a busy day . i would have been very nerves i don't like talking in big groups of people i don't know ,

Nanny1086 profile image
Nanny1086 in reply to mmzetor

Me neither ,,,,,when I told my daughter she was very shocked but very proud to ,,,,she is used to public speaking etc ,,,,,I didn't think it would be such a big thing I was going to do ,,,,,so I hadn't told her ,,,,,

velvet55 profile image
velvet55 in reply to mmzetor

Hi Mm

Ho bloody Ho

You have no problem rattling away on here 😂😂

xx

mmzetor profile image
mmzetor in reply to velvet55

are that's different its not in a group in person I wouldn't even do a proper wedding speech just a very quick shaky thank you for coming  

onamission profile image
onamission in reply to mmzetor

Gob oil Mr M get yourself a hip flask lol

Well done Georgina.  It's people like you who help the rest of us and future lung sufferers.  Let's hope they listen and take on board what you and Sarah have said.  x

Nanny1086 profile image
Nanny1086 in reply to

Sarah was the COPD nurse that started the PR in our area I was her first patient ,

in reply to Nanny1086

Which is one reason why she took you along with her!  She sounds great - can you send her to my area please?  lol  x

SquirrelsHolt profile image
SquirrelsHolt

Really did yourself and us proud. Good Nanny1086. Give yourself a pat on your back!

Nanny1086 profile image
Nanny1086 in reply to SquirrelsHolt

Thankyou 👏👍💊

Jessy11 profile image
Jessy11

You were very brave Georgina! Congratulations for putting a strong case to NHS Trust South for all Copd patients. 

You've done a marvellous job & I hope your words don't go unnoticed. I'm sure you'll make a huge difference! 👏👏💐

Nanny1086 profile image
Nanny1086 in reply to Jessy11

Thankyou ,I appreciate your comment ,fingers crossed ,,,,,

ClaraC profile image
ClaraC

Congratulations Nanny😃

Nanny1086 profile image
Nanny1086 in reply to ClaraC

Thankyou ,😊

Dedalus profile image
Dedalus

Well done Georgina & a big thank you - couldn't have been easy x

Nanny1086 profile image
Nanny1086

Thank you ,knees were knocking a bit 

onamission profile image
onamission

Well done Nanny we need our PR worst thing that happened to our NHS when they introduced trusts we have lost so many services in our hospital since we became a trust. And you are correct because we have the knowledge to manage our own copd we spend less time in hospital saving the NHS a fortune we also feel we are not alone and we have help at the end of a line.  

Nanny1086 profile image
Nanny1086 in reply to onamission

Which was my point exactly ,,I hope I got the message across to the men in suits ,

FarmerD profile image
FarmerD

Well done Nan 👏🏽 D.

Nanny1086 profile image
Nanny1086 in reply to FarmerD

Thank you ,

hufferpuffer profile image
hufferpuffer

Wow! Well done, you overcame your fears and helped your nurse make a case for PR and preventative care!😁 you are a star Georgina! huff xxx

Nanny1086 profile image
Nanny1086 in reply to hufferpuffer

Thank you huffer puffer ,,,,,seems I've been keeping my talent for public speaking hidden for 70 years,haha 🏥❗️

Fantastically well done Georgina!  Congratulations for putting our case in such a great way.

xx

Nanny1086 profile image
Nanny1086 in reply to

Nerve racking Jennifer ,,,,,but I think I did ok ,x

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