Thank you Nanny: Mr Amazon just... - Lung Conditions C...

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Thank you Nanny

y_not profile image
36 Replies

Mr Amazon just delivered my Flutter device - oh, my chest aches now but it certainly does as good a job as Mr Muscle plughole unblocked!

I was trying to work out how to make the text stutter but I gave up cause I can't think how to.

So thank you from the bottom of my gunge free pipes!

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y_not profile image
y_not
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36 Replies
James48 profile image
James48

I take it definetley works? I'm thinking of getting one

Best wishes,  James

y_not profile image
y_not in reply to James48

Hi James,

Yes, it's akin to having a pummelling massage but from the inside! Don't feel I've wasted the money and plan to keep on using the Flutter.

I've posted more details about it below in reply to vere.

Good luck & best wishes

Tony

James48 profile image
James48 in reply to y_not

Thanks Tony and a good reply to Vere. Just to be clear, my lungs are very congested although I exercise and it helps to clear them a bit, would the flutter device definetley help with clearing congestion?  Thanks

y_not profile image
y_not in reply to James48

I'm no expert and can only tell you about my experience, generally my lungs aren't (in my opinion) too bad albeit the GP prescribed Carbocisteine. 

I walk (slowly) pretending that I'm exercising, breath (heavily) because I find the walking hard work, clear my chest (frequently) but when no one's looking and it is on the moors and the Flutter seems to help clear my lungs - it could be the drugs but that wouldn't explain the amount cleared since it arrived yesterday.

PastMeBest profile image
PastMeBest

Hi y_not, my wife who suffers from COPD used to suffer a great deal trying to get the mucus up. She was able to obtain a Flutter Device from her GP on prescription but when she took the prescription to the Pharmacy they didn't know what it was. 

The Flutter Device did help my wife with the mucus problem especially when she has Bronchitis, but since being prescribed Carbocisteine 375mg capsules she hasn't needed to use it very much. 

I am pleased that the Flutter Device has worked for you just as it did for my wife. I'm surprised that a lot more people don't use one but that may be because it is not widely known about.

Regards John

y_not profile image
y_not in reply to PastMeBest

Oh John, are you telling me that I could have saved fifty quid [damn it!] ;-))

Still on the tablets but plan to continue with the Flutter as well (twice a day) because I can't see that it can do me any harm.

Many thanks for your reply

RibvanRey profile image
RibvanRey in reply to y_not

I am sorry that you and several other did / don't know that the Flutter is available on prescription. 

I wrote a couple of articles here about the device and these very points. Also about how the device worked.

We must make more effort when welcoming newcomers, to point them to the vast library of information available instantly via the Search icon. (the magnifying glass ). A poor choice in my opinion. A button labelled Search would be more obvious.

Anyway, welcome to the Flutter-club. Keep that ball dancing. Don't be put off anyone who finds it difficult to find the right angle to hold it and the right way to blow. It takes more practice for some but it does work.  Rib

James48 profile image
James48 in reply to PastMeBest

I agree with the comment about 'not widely known about'  John. I don't understand how the BLF, GPs and COPD teams do not recommend it as a basic tool for lung problems???

Greatbanks profile image
Greatbanks in reply to PastMeBest

Hi past me best 

Lol love the name ha me to !  I bought my own a asthma  nurse mentioned  it to me years ago !  I have cabersistene  to big help but the flutter I find hard use these days ! It's worth buying one to give some relief if you have enough puff do it . I have COPD and bronchitis asthma .i find its hard to use today .

vere profile image
vere

Thanks for sharing this. Which device did you pick from Amazon as I am very interested in getting one. Vere

y_not profile image
y_not in reply to vere

Bought this one amazon.co.uk/gp/product/B00... I have to say that when I disassembled it this morning (after using it again) to clean it I thought 'How do they justify the cost for a few bits of plastic and a ball bearing?' but, when you think how many/few they will sell and the R&D costs, tooling costs ect then I think I get it.

The advert says 'The Flutter should not be used if you suffer from the following conditions: •Pneumothorax •Severe Tuberculosis •Haemoptysis (Coughing up of Blood) •Acute Right Sided Heart Failure' - don't know if anyone has these issues.

Disappointed that, just like my sleep mask, I can't throw it in the dishwasher because that is the way to get things properly germ free!

Purchased on the evening of 24th, selected the free (not Prime) delivery option and it arrived last night (26th).

I found that the best effect was to tilt my head back quite a bit but keep the pipe parallel to the ground - then the top half of my chest feels like it's vibrating and it seems to be at it's most effective.

Hope this helps (and no, I have nothing to do with the suppliers; until Nanny mentioned it I'd not even heard of them!)

Best wishes

PastMeBest profile image
PastMeBest in reply to vere

Hi Vere, just had a quick look on Amazon for Flutter Device (see link below).

amazon.co.uk/s/ref=nb_sb_no...

They are definitely available on Amazon but I wasn't impressed at the price shown. 

As I mentioned earlier, my wife was given one through her GP. It was the GP who mentioned it to my wife and looked it up on the computer to see if it was available on the NHS. She then wrote out a prescription for it straight away. The only problem we had getting the Flutter Device was because the Pharmacy hadn't seen one before so they had to ring around their suppliers to find one which took a few days.

I suggest you talk to you GP about obtaining a Flutter Device before purchasing one. It may save you some money.

Regards John.

James48 profile image
James48

£54.99 on Amazon - £49 with free delivery from Evergreen  evergreen-nebulizers.co.uk/...

y_not profile image
y_not in reply to James48

Thanks James - made me feel so much better! ;-0((

Greatbanks profile image
Greatbanks in reply to James48

James 48. Yep I paid same years ago for mine 😊 You don't pay VAT for medical devices make sure you fill in declaration  vat exempt when buy it !  The cost is reason why GP's don't prescribe it maybe ??? 

James48 profile image
James48 in reply to Greatbanks

Thankyou Greatbanks. I mailed the company and they said  it's  sold VAT free so customers do not have to claim the VAT.  

Pantani profile image
Pantani

If you get one of these and you have a chronic disease you can reclaim the VAT back.

y_not profile image
y_not in reply to Pantani

I gave up trying to claim VAT back, bought an air conditioner (work from home in south facing room where one wall is just glass) to try and cool the air to a breathable level. They said "NO!", then a few minutes ago my payslip arrived .. £350 taken just for NI this month!! 

RibvanRey profile image
RibvanRey in reply to y_not

Always claim it back on items that would obviously not bought unless you were disabled.

For other expensive items that you truly bought because of yourdisabilities, but may well be bought simply as a luxury, be prepared to write in detail explaining why the seemingly general item is needed because of the excessive wear, multiples of an item that normally you would only ever buy one at a time.

Good luck. Rib

Billiejean_2 profile image
Billiejean_2

I got mine free while in hospital recently. That's the third one I've got from the physio dept in 3 years. Sometimes it works for me and sometimes it doesn't but another little item that's handy to have in the toolbox. I learned ( the hard way) that blowing too much and too hard into it is not recommended and you feel like your head's going to explode. 

Greatbanks profile image
Greatbanks

I bought one of those a few years ago  they are brill  and a godsend 😊, but these days I've not got enough stamina use it wish I could !

Nanny1086 profile image
Nanny1086

You are very welcome ,,,I'm only pleased it's worked for you ,,,,,I've had to up the use of mine the last 3 days as I've neglected myself in use of mine ,,,,so a good clear out today ,,,,remember do the easy part first ,,,and I have a glass of water to sip I between blows,,,,,to do it properly I was first told it should take about 20 minutes,,,,,,but I'm usually ok with 10 minutes when I use it 2/3 times a day ,,,,and remember to use it at least once a day EVEN WHEN WELL ,,,, keep blowing ,

maximoe profile image
maximoe

Hi Y_not, I've had a flutter for some time now, My husband bought it 4 me, I av asthma, bronchitis, I was struggling on carbocistine  I take 6x daily & it just wasn't getting the mucus up enough to be able to breath better. When i first started to use it, i used it all the time & for long periods & my wind pie became very sore, i ad a word with my resp/physio & there told me i was blowing in it for too long & doing it too often, so i took her advice & only use it when i'm struggling to breath & feel like my chest needs clearing. Doing it this way is better for me, now i don't feel like i'm gonna suffocate. I'm sooo glad it works for u, but if ur chest is hurting be careful & take ur time with it, I usually wait till i'm really struggling before i use mine. Good luck with yours, let us all now how ur getting on with it in the future. Gentle Hugs. x.

siskin profile image
siskin

I am surprised people are having to buy a flutter device. I have mine on a NHS prescription just 4 weeks ago.

I have bronchiectasis, I pointed out to Dr if it worked for me it would save the NHS a lot more than the cost of drugs.

Have to admit haven't quite got the hang of it but waiting for  specialist physio. to show me how to use it properly.

y_not profile image
y_not in reply to siskin

My GP recently moaned that Carbocisteine was very expensive - at £13 a month ... paying fifty quid??? Think I might have to learn resuscitation if I suggested that to him!

I think my GP is a member of the LHS rather than NHS (that's LOCAL Health Service) and I think he funds it out of his "average" £48k salary (according to their website!) 

Good luck with it - hope it works as well as it is for me.

siskin profile image
siskin in reply to y_not

Well don't let him know that my RA injections are £108 a week. 

y_not profile image
y_not in reply to siskin

You'd love him, 20 minute lecture about the cost at every injection!

siskin profile image
siskin in reply to y_not

I typed £108 should have been £180

Keep-positive profile image
Keep-positive in reply to siskin

I had not heard of the Flutter device, (I have bronchiectasis like you siskin), my respiratory physio gave me the Flutter device to use at home.

I had been straining my chest trying to clear my lungs, my physio advised me never to do this, I find the Flutter a fab weekend device also

Keep-positive profile image
Keep-positive in reply to Keep-positive

Wee device. Predicted text again !!!!!!!! ha

Pugs4love profile image
Pugs4love

What's a flutter device iv never heard of this what is it how does it work sorry for being dull iv had copd for years they tell me now it's emphysema and still no sure about thing that could help

y_not profile image
y_not in reply to Pugs4love

Neither had I until Nanny mentioned it a few days ago. evergreen-nebulizers.co.uk/... seems to be the cheapest one (although I paid more at Amazon!); youtube.com/watch?v=Y1pfTNF... shows it in use.

Hope it helps

Azure_Sky profile image
Azure_Sky

Have ordered one on Amazon Prime. Our Doctors are a penny pinching lot, so it would probably be a waste of time asking them.

Keep-positive profile image
Keep-positive

"y _not " you have a great positive attitude ha, that's the best approach to coping with this debilitating illness 🖒

y_not profile image
y_not in reply to Keep-positive

Thank you, I'd love to sit around and moan constantly but I don't think anyone would take any notice (and my wife would start beating me with a big stick) so I don't have many other options really 😉

Keep-positive profile image
Keep-positive

Lol.....it does get you down sometimes when you can't do the things you want to but your right nobody wants to listen 😀😀. Yeah onwards and upwards eh? Either that or sit and feel sorry for ourselves which doesn't help 😞

Keep well y_not 🖒

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