New and lost: Hi just new to the post... - Lung Conditions C...

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New and lost

monju profile image
24 Replies

Hi just new to the post have been diagnosed with so many health problems am at present with Royal Brompton and Watford General. 

I have emphysema and asthma.

My husband has just left knowing I had to go through another operation, I understand it can be hard on partner, just reorganizing my life again.

kind regards

Monju

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monju profile image
monju
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24 Replies
Tee1008 profile image
Tee1008

Hello Monju and very nice to meet you.

It is so sad to read of your circumstances and you must be feeling quite abandoned.  It can be, as you say, difficult for our partners to be around so many health problems.

I hope you will feel welcomed to this 'virtual' family and post some more about yourself.

All the best

Tee x

monju profile image
monju in reply to Tee1008

Dear tee

Thank you for your kind words, it's just life and I will go on. 

Just trying to get on with it and let the rest happen. Very kind and positive words will take them aboard.

Monju

megannell profile image
megannell in reply to monju

" A big warm welcome to you Monju...You've joined a wonderful supportive family now who will and do understand all your fears.. Your worries. Never feel alone in this lovely big happy family..Yes its so sad when our family and friends seemingly turn away from us.. But its their fear of the unknown that does it..and like everything else in life ...time is a healer.. Once you tell us more about your health issues and worries..then the more we can give you our support.. Keep yourself positive as your surrounded now in a big supportive family...Megan.."

monju profile image
monju

Thank you Megan

I have had chest problems for a while hoped it would sort it's self out. GP sent to watford who then referred me to Brompton who informed of the following problems. Emphysema, atopy asthma with poor reversibility, scarring on both lungs and taking so many inhalers and tablets.

As for the husband just had a major surgery done another one to follow and his gone. Still carrying on and getting on with it.

Monju

Jessy11 profile image
Jessy11

Hi monju, a huge welcome to our 'club'😀

I'm sorry to hear of all your health problems. I think it's the fear of the unknown & the future that some people don't understand, making them turn away. 

I so hope you can get the help & support you need. We're here for you at all hours if you would like to tell us more about yourself or if you'd just like to chat. 

Take care of yourself 💐

monju profile image
monju

Hi jessy 

Thank you  for your kind words just trying to get my head around everything. 

Regards

Monju

sassy59 profile image
sassy59

Wishing you well monju, we are here for you. Xxx 

monju profile image
monju

Thank you  Sassy

Kind regards 

Monjo

Junegirl03 profile image
Junegirl03

Hi and welcome this is a lovely place to be and share the good and the bad, somethings are easier to say here than to family/ friends as people here are walking in similar footsteps. Love and best wishes debs xx

monju profile image
monju

Dear Junegirl 

Thank you just so confused and adjusting to being single again at lest the cat has run off.

velvet55 profile image
velvet55

Hello and welcome monju.

You have found a great forum, for help and advice, a good chat, and a few laughs.

You sound as if you have a positive outlook on life.

I am looking forward to hearing more from you.

Velvet xx

tbeth profile image
tbeth

Hello Monju,

Glad you are here.

Titchy52 profile image
Titchy52

monju  hi welcome to a very caring supportive family best wishes x

diesel12 profile image
diesel12

Hi and welcome, You are having a tough time of it at the moment and sound as though you're being very strong about everything. I wonder if that really is the case? You have found another "family" here who will support you, listen to you and care what happens to you so happy to meet you and hope to get to know you better xx

monju profile image
monju

Hi Diesel 12 and Titchy 52

Thank you for your words of support, just getting on with it, have no choice, trying to adjust to being on my own. Have no family, so just trying to get on with it.

Monju

monju profile image
monju

Sorry tebeth

Thank you for your support. 

Monju

Dedalus profile image
Dedalus

Welcome to the group monju

monju profile image
monju

Thank you Dedalus.

Hello monju,

Don't feel alone. I am glad you found us.  Sometimes family can't cope with seeing the person they love suffering and then  you have to be doubly strong yourself to get through some really bad times, and all that when you are feeling at your own lowest, but on the up side, you sound positive in yourself, and if there is anything any of us can help you with, please tell us, we'd like to get to know you.

Jennifer

xx

monju profile image
monju

Hi Jennifer 

I understand perhaps some people are not strong enough, I failed to mention he was having an affair.

He can't break me as it's not the first time. Would it be wrong of me to say that it was no surprise? I think I am disappointed at the fact he know and planed this knowing I was going down hill with my health.  If I am honest better now than when things get so worse. 

Now I  am able to plan a proper care plan and just doing what I want for a change.

Thank you for your support I have never felt so wanted and loved by strangers in my life, didn't think it could be possible. 

Nottobad profile image
Nottobad

Hi monju I really do not understand why people with medical conditions have such a problem with there husband/ wife not understanding and get no help. What happend to sickness and health. My husband died 3 years ago due to heart failure. But he was very suportive to me with my medical conditions. And I was his carer after he had his heart attack. Now I have to do everything by myself. But just take everyday as it comes . And do what I can when I can. And the support from this site is very helpful. Take care

monju profile image
monju

Dear Nottobad

Sorry to hear about your lost. You have given me some sound advice and please belive me I will take it aboard.

Maybe in my case I just focus on how my health was going to trun out.

Spoke to my consultant and he was so supportive and understanding. 

Not sure what the future has planed but I am not going out with out fight.

Thank you for sharing something so personal and I am so grateful your husband is not one of those who gave men a bad name.

Love

Monju

Wumpy profile image
Wumpy

Hiya nonjury, I am wumpy cos it's my sons name - lost him several years ago, he had depression and overdosed, will never get any easier. Then on a happier note I was diagnosed with fibromyalgia, then diabetes2, then COPD, and I refuse to think about it getting worse. I do think that specialists and doctors really do not understand how it affects everybody i.e. I wake up every day in pain and then worry all day about dieting! How do you feel it gets you nonjury. I have two Persian cats (they say its bad for my breathing) but I don't care they are my best friends. Husband is useless, says I winged all the time, well if all those partners out there had the pains we have they'd winge too lOl.

monju profile image
monju

Hi wimpy, I am so sorry for your lost. 😔 We have to deal with so many issues and yet stay strong. It's a never ending turning off wheels. We can only keep fighting on. Stay strong and if you need to talk then feel free to do so. ♥

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