Hi all.
I am baffled as to what a good/bad day is living with copd.
My days are practically all the same,breathless,tired,lethargic.if the weather is too hot or too cold,I find breathlessness is worse,so I assume these are "good" days.
I presume that exacerbations are the "bad" days.
My good days were not being breathless coughing wheezy and being able to walk 4 miles if I wanted too that was between exacerbations and only had 2 a year. Now for the past few years every day is a bad day with or without a exacerbation it has something to do with my immune system well that's what the consultant thinks. But I think it has to do with having 2 autoimmune disorders recently diagnosed I will be glad when they find out what it is. Take care
I agree that your Autoimmune disease will be affecting your breathlessness. I noticed a long time before Copd diagnosis, that I'm breathless when I'm fatigued due to a flare up.
I have umdiferrentiated connective tissue disease, which is basically, pre_lupus. It's taken years to diagnose as I was first diagnosed, 2004, with Rheumatoid arthritis. xx
Thank you Casper99.i wish the consultants would listen to me. They have known for years that my immune system is low and that's them deciding to send me to see a immunologist. I have psoriatic arthritis and psoriasis. But have had osteoarthritis for a long time .
There is no such thing as a good breathing day when suffering with lung disease, there are bad days and not so bad days.
Of course we can still have fun once we except our limitations, especially on the not so bad days 
.
Hi Tony well said hope your ok
I must be really lucky, most of the time (if I use my inhalers properly ) I'm able to get on with my life ok. Yes I get tired but I have to work and I love going for my lunchtime walks and am feeling fitter than I was this time last year. Today my chest is rattling a bit but I have a cold so we'll see how that develops. It's spring and the crocus are out and I'm going to London tomorrow to see my friends so that will be a good day Actually, this is a great post because it's made me think about all the good things I have going on.
Having said that I am only moderate (fev1 52) so maybe I'm lucky in that too. xxx
You sound like you are really enjoying doing what you do diesel😊
And yes you are very lucky to be able to do most "normal" things.good luck to you I say......
I am severe (fev 38)....so most things to me are so hard to do.
This year I have not been into town via public transport,as I can no longer walk to the bus stop🙁
And yes,the tiredness is awful....
But your post is so positive.
Keep up the good work.
Xxxx
don't get me wrong I do have off days but I won't let this damn thing beat me and it's my way of fighting back, I have things to do and places to go yet
2 months ago I was in far worse place (before my diagnosis) I couldn't walk far at all really but every day even when it's raining I walk a bit further and have now started walking up inclines. No 2 people with copd are the same or have exactly the same symptoms (as I understand it) so I am going to just carry on being stubborn as it works for me. You are probably far better at other stuff than me but I've been practising being stubborn for years and am quite good at it now. What's your "talent" ?
Haha,I love it that you are so stubborn....
And I really admire your determination to not let the damn thing beat you.
I used to have that thought too,but it beat me.sort of.but not completely.
I do 10 mins a day on my exercise bike.plus I do 10 mins walking on the spot.i do take my dogs to the green outside my house daily,but I get very sob doing that simple task.
That's my talent😊
X
That's a good talent, keeping going and I'll send my dogs round for a walk with you. Do you use your inhaler before doing that? That helps me, I can tell if I don't but I have mild asthma too. Hey you also have another talent, You're strong too other wise you would have le t it beat you. When you're having a bad day just remember your "talents" and know you'll come out the other side
Oh believe me,it's not a walk they get,more like a meander,I'm sure your dogs would soon get bored😊
I take 3 different inhalers.so yes,before I do any form of exercise,I take my meds.
Thanks for the lovely words,much appreciated.
I'm feeling rather anxious today as I have my pip assessment tomorrow,and just hoping it all goes ok.
Wish me luck!
X
Just a small bit of advice take you time answering all the question, answer no to all of them and then explain why you can't do something. If you answer yes but ... and go on to explain how difficult it is they have already ticked the box that you can do it without listening to your problems. I hope this makes sense and you understand what I'm saying. x
Hi fantasy my fev is 38 too so I totally know how you feel. I seem to spend a lot if time leaning on things (kitchen work top etc) just trying to get my breath. I do try to do as much as I can and on better days try to get out. Like you I can only walk a little way but I am lucky I have a car with a hoist so I can put my mobility scooter in the boot. These are my lifeline without them my life would be so much worse. I'm going for an oxygen assessment on Thursday so will let you know how that goes. Take your time and do what you can at least the spring is here and the better weather. Take care x
This has really got me thinking lol! So how stubborn am I? You see my profile pic? Well the lovely chap on it is one of my heroes (Woody, the drummer from Madness) A colleague who I had helped during her final illness arranged for me to meet him. So a couple of days earlier I came down with a chest infection, a really bad one. Couldn't breathe , couldn't walk let alone dance, so of course I went lol! I had to sit on the floor every 10 yards to get my breath for about a mile but I got there and got to watch the concert from the stage wings. Woody was amazing as were the others but I did at one point think I might die.lol! me? stubborn??????
I will have a go at taking some photos at he pub tomorrow but I am rubbish, My friend asked me to take a group photo and showed me how to do it on an iphone. she ended up with 68 and they were all blurred lol! (true story)
whats a good day with copd, I have 2 types of days a quite bad day or a very bad day lol
I just think it could be worse. I lost a friend a couple of years ago 40 years old with a brain tumour, she fought so hard but lost the battle. It has made me realise that I should grab each day with both hands and say thank you. Yes some days are rubbish and more so for some of you guys but at least we are here to laugh and cry, thats why I try to stay positive and the fact that some of you guys have it far harder than me and still smile and laugh. What on earth have I got to complain about?
You guys are inspirational, you just don't realise it. xxxxxxx
Hi ive had copd for three years i have plenty of bad days i get so tired and breathless and just want to stay in bed all day . I wont let it beat me im 64 and still working full time , ive no.intentions of retireing any time soon
Everyone feels different, I didn't mean to sound like my life is perfect but this is the only one I have and I'm going to make the most of what I have. You're all great people doing the best you can with the hand you've been dealt xx
COPD and Bronchiectasis
not a good day
What a difference a day makes!
A bad day today
Hill walking and COPD.
