copd

[tippiestoes]

6yrs after being diagionsed my lung funcation is at 70% and weightloss tryed to get my ihalers changed

tryed 2 many times have never took them daily as the side affects ,only now the doctors worried he said

i be in a wheelchair in the next eight years feeling abit vunerable .

,

[Ennyl]

I detested one of my inhalers bad taste in my mouth I went back to doctors he changed it to same drug but not powder I don't mind taking it now. At first when diagnosed I took inhalers regular then tailed off laziness on my part I now take them everyday after five weeks and lotsa weight loss fatigue unable to breathe I finally accept I gotta help myself more if I don't want to give up my work.

This COPD has taken more than enough over last three years I don't intend to lose my grip on it again. I accept COPD I can't change it but I can change how I fight it and doing what I need to do is my way now x

[tippiestoes in reply to Ennyl]

so positive and pleased you have found away of managing copd like you its has taking enough away from us and only now i can start 2 take more control over it rather than it control me, i,m going back 2 vouluntery work and still do my gardening and stuff ,im glad you work with a bit of luck may be me to i know i,ve got 2 take the inhalersas deep down feel quite scared that its all 2 late [god hopefully not]

i think thats because of the type of vouluntry work i did but but stuff that

happend the last 5yrs seems 2 of taken allmy inner strength .

take care x

[Ennyl in reply to tippiestoes]

Gardening is excellent! I do light gardening to and it takes you away from daily life I love to potter in my small garden or sit watch birds sometimes I read.o know how it sort of hits you our illness it takes you off course a while but for me I wanted to continue work I felt if I gave it up I was giving up myself. Voluntary work is a lovely work to do and I hope to do some when I eventually leave work. And how lovely you are to take it up again your a giving person and I know it will help you in so many ways. You can't change your illness but no reason why it should change you! Work around it don't let it take any more than it has. You know when you love what your doing in your life it honestly loved you back, let me know how you get on please x

[Ennyl in reply to Ennyl]

Oh an it's never to late to enjoy bit of your life. Inhalers are necessary can you imagine how we would feel if there weren't any? Please don't blame yourself or feel regrets. Waste of your time you are worth every day you wake up do enjoy everyday whatever it brings its yours x

[tippiestoes in reply to Ennyl]

thankyou for your kind words and positive thoughts i like to sit in the garden and just watch the birds and squirrels and my 2 cats trying half heartldy trying to catch them ,when its cold and sunny i feel free and alive like i can tak on the world and i do have so much to live for me and you both

its just getting used to not pushing myself 2 hard but cause i,ve allways been and had 2 be on the go allthe time its hard loved my voluntry workit gave me a sense of belonging and were i could be me thats why i so pleased you have that positivity to carry on working i had allmost

t giving up on myself but you,re so kind and you,e words so gentle

im will take each day as it comes and set little goals.

any idea what type of v.work you would lik to do,i am thinking o doing a community project painted a park area 0n a housing estate below the west way keep an eye out for it in the advert o tv the girls talking about the navy when i see it it it was like oh we did that pak and garden x yrs ago.but the bad 5yrs draws me to my previous v.work got to see the doctor 2 morrow hope its goodnews thankyou

once again for taking time to talk to me it means so much

please let me know how you are enjoy each day x.

[Ennyl in reply to tippiestoes]

Your looking ahead already! Take it slow even though we all feel we can rule the world in our heads our bodies don't always agree! I think the hardest part is to get back on that roller coaster of life, try give yourself one morning volunteering do what you want to do as being happy in your volunteer work is what keeps you going. It's purpose outside of our illness and mentally we can move mountains. You have done so much ! I applaud you painting a park! Excellent your giving so much to people you don't know how lovely the smiles you have given to many. It makes you smile inside I know this. Take you time search every avenue there is more for you so much more and I can't wait to hear your next project tippiestoes. And have a moan it's good for you we all do that's what's so good about this site we may not understand fully everyone's illness but we all understand its ups and downs, keep posting please kep messages coming as I am so wanting to see you move forward and enjoy helping others and that as you well know is helping yourself x

[FarmerD in reply to tippiestoes]

I know this is late but hope you read it.I turned 60 in March 10 years of Copd.I now have severe emphysema Fev1 of 20%.I struggle to do most things but with exercise I have actually improve enough to be offered LVRS.I would love to be at 70% but that is pie in the sky.Excuse me for saying but your doctor sounds like an idiot ,you should change to one that knows about Copd.I have a wheelchair for hospital visits we can walk for miles for different tests and waiting for porters drives me mad.I will struggle all the way as I,m a stubborn old git now lol.Kindest regards,David,🌸🌷🌹

[nosnikrap in reply to FarmerD]

what is LVRS famer D

[peege]

Well, I don't know what to say.

They don't prescribe expensive inhalers for nothing. They're to keep your airways open to help prevent infections as well as SOB. If you've had side effects you need to go back to the surgery, see another doctor if necessary younger ones are sometimes more in to preventive medicine . it's your right to see any doctor. I'm sure yours is right, if you don't manage your condition it can only get worse more quickly.

PLEASE go back and don't allow yourself to be fobbed off. Good luck.

[tippiestoes in reply to peege]

i know what you,re saying and only know im trying to ge the docto to listen to me i know only to well how expensive it is 1 reason i dont collect my monthly perscripition .

[2malinka]

Hi S

Speaking as somebody who was diagnosed with severe COPD two years ago. My LV1

[tamariki]

If your lung function is 70% you don't really need more than a relieving inhaler.

[tippiestoes in reply to tamariki]

thats intresting please explain why ? cause im totaly confused and dontwant to be taking any unessary medication my gp insists that i need it as i am a smoker as well and 70 is bad ?thanks staywell .

[tamariki]

If your lung function is 70%, did you get that figure after a spirometry test, and do you mean your FEV1 is 70%? If it is, you really only need an inhaler for if you get a sudden shortage of breath. You will be given other medication should your FEV1 fall .

Smoking is very very bad if you have COPD. It is the main cause of this disease. Your COPD will gradually get worse, should you continue to smoke.

[mrsmummy in reply to tamariki]

That is an interesting point of view about inhalers tamariki and may be true in your circumstances but as each of us is different I think the GP, having the full picture, is the one to decide what medication is needed for tippiestoes.

[Hidden]

If you keep smoking you will only get worse if you stop you will slow down the progression but I think you will always be breathless you should take all the medication you have been given all the time. The damage has all ready been done take care