Positive all the way.

[gothmum]

I could gripe and whinge about all that's wrong with my health.Everything s mad But do you know what,I'm still here,I can concentrate on the negative or concentrate on the positive.I hate being on O2 constantly, but it keeps me alive,so how can I moan?

Living with a gallbladder that's a complete ass,but they can't operate on is crap,but I'm still alive,can still eat,and have amazing nurses who come out to give me pain relief.

So for every negative there's a positive,and that's what I concentrate on.

I have my battery operated portable oxygen concentrator, and I'm still overjoyed with it.I can finally get out with my son,I'm going into Edinburgh to the surgeons hall museum,then the national museum of Scotland. These are things I thought I'd never do,but thanks to my concentrator I can.Life is amazing,and I will appreciate it to my last breath.I LOVE LIFE,and will keep fighting to be here,I'll never give up.I'm far too stubborn for that lol.

[Hidden]

Brilliant attitude to have , and enjoy all you get to do . xx Sonia xx

[Katinka46]

Thank you so much for that. Brilliant attitude. Well done. Keep going, because we need you.

Kate x

[gothmum in reply to Katinka46]

That's so lovely,and a relief,because I need all of you <3 xox

[velvet55]

Hi gothmum

Go for it Gal...l agree with you 100%.

Brilliant attitude...have a great time on your travels.

Velvet xx

[Hidden]

Good on you go for it

[Billiejean_2]

Hi Gothmum, your positivity is a lesson to us all. I teeter on the brink myself. Most of the time I keep positive but when things get really difficult, I whinge and moan and drown in self-pity. Then I get over it and start again. Enjoy your upcoming trips with your son in lovely Edinburgh.

[Hidden in reply to Billiejean_2]

Everyone is allowed to whinge and moan sometimes BJ, but the important thing is you pick yourself up and carry on. Well done x

[jimmyg23]

Hi gothmum I like you're attitude that is the only I am on oxygen to very severe emphysema but we just have to get on in life still manage my holidays with grandkids so you carry on girl enjoy what we have enjoy your day in Edinburgh my daughter goes up ever week beautiful city so have nice day

[sassy59]

Love and hugs to you. Xxx

[MarieW-F]

Make sure you look out the Arthur's seat coffins at the NMS. An eerie but really fascinating exhibit. I would suggest lunch at Vittorias on George IV bridge.

I do think that keeping positive is vital. its abut setting little goals that are achievable and that you look forward to doing. striving to do stuff, go places and spend time with the people you love.

You go go go Gothmum

x

[Katinka46]

I haven't remotely changed my mind about how brilliantly you are going at things. But I also feel that we are entitled to face the shittiness (will the site allow this word, yes, they do!) of life sometimes. You have been dealt a horrible set of cards. You are very young, by the standard of most of us here, anyway, and have a lot to put up with. So don't feel that you have to always maintain a smile. You can weep and lament and grieve for what you have lost. Have you seen 'Inside out', the Pixar film? It is about how we need to mourn our losses, grieve, because we are human, and bereavement in part of being human. You can always rant and moan here. We are endlessly good at that with lots of virtual tissues at hand and satellite sent hugs galore.

All the best

Kate xx

[CELAT06]

What a fantastic, positive, atitude, you can teach us all a thing or two. You help me put my ailments into perspective, thank you. You keep on keeping on my lass, and enjoy your journey through life as much as you can.

All respect and best wishes,

Christine. XXX

[Tatters]

What a lovely posting and so encouraging to others. I'm a 78 year old man and I have been very active all my life until 2/3 years ago, I am on 24/7 oxygen now, since August. I find it a bind and have stopped going out for meals feeling a bit embarrassed with the cannula on, but my Occupational Therapist has made me promise her I will go out in the next 7 days for a meal, she's pushing me and I do appreciate what she is doing. I bought a portable concentrator and find it very helpful. I did go to a function with over 100 in attendance and that went reasonably well but shattered me, I already knew most of them so I was amongst friends. Thanks once again for your posting, Tatters.

[gothmum in reply to Tatters]

Thanks for being so encouraging. I was a hermit for ages because of my oxygen,I've been on it 5 long years now,and could never manage my "portable" system supplied by the NHS,so getting my battery operated system has just given me a lust for life.

Please go out and about,its a long and lonely day in the house and you can get too into your own head.You're amazing because you're still here,fighting on,encouraging people like me.Feel free to adopt me 😉 lol.Its a shock to your psyche when you become oxygen dependant,but we're still here,fighting on,and we have damage to do together 😉 lol.Please keep in touch and please talk to me any time x

[mskpjb in reply to gothmum]

Hi hun, I`d be interested to know which oxygen system you`re on. I have to use the "portable " cylinders which only last 2 1/2 hours because I`m on 3lpm constant (not pulsed). I believe you can carry extra batteries. By the way, you have beautiful eyes. I daren`t put a photo on - everybody`s screen would crack ! Keep well, Sheila xx

[gothmum in reply to mskpjb]

Hi love,thanks so much for being so kind you made my day ☺.I was on the homefill system you fill the tanks from your concentrator,before that I was on the liquid oxygen,they deliver a huge tank every 2 weeks,and you fill a tank from that.But I fundraised and raised enough to buy an inogen one G3 each battery lasts me 8 hours,and I bought 3 batteries.I was on 3lpm for ages and 4 before that and I did deep breathing exercises my hospice therapist taught me and I've got myself down to 2lpm I'm overjoyed.

And you put a photo up,I bet you're beautiful,us women have terrible self image issues,I feel like an ugly beast lol.

Hope you're doing OK,I'm always here for you to chat to xxx

[mskpjb in reply to gothmum]

Thanks for your reply Gothmum. I was on liquid oxy a while ago. Loved it `cos I could carry the small flask around my waist, then they upped me to 3lpm constant which meant the bigger flask that I just couldn`t manage to fill. So - back to the cylinders which I drag around on a trolley. Great that you`ve got your oxygen need down to 2lpm ! Make the most of your G3. Leave the housework. Get out and enjoy ! Love, Sheila xx

[hufferpuffer]

Great post Gothmum, I love your positiveness, it's catching, keep smiling 😁💜 huff xxx