Organ donations vetoed by hundreds of bereaved families

Hi Cold And snow here,

Was reading the news this morning and this caught my eye. bbc.co.uk/news/health-35304105

On the face of it this seems innocuous enough , They want to limit the power of next of kin to refuse organ donation even if the person who died had consented at some point in his life.

I am a bit perturbed by this, After all organ and tissue banks are ran by private business for profit. Its not all about saving lives, Look at the scandals in some hospitals with taking tissue from a fetus without consent, abortion was supposed to be mainly for health reasons, but now can be obtained privately for Social needs. The problems with the Liverpool pathway. After all a hospital can and do issue a DNR without the next of kins permission

Some how I think it is an infringement of family values.

Has anybody any views on this.

On a lighter side. you could end up on EBay, Grannie for sale, parts only

20 Replies

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  • I agree that it all needs to be transparent and open. I did not realise that private companies were involved in organ donation. How does that work? But with regard to the donation of organs, heart, liver, lung, kidney, cornea, etc. The parts that we all think of as being donated after death, I cannot get my head round anyone NOT wanting to donate these when a family member dies. What is going through their heads? When I was driving to the hospital after my husband was run into by a motorist as he cycled to work, and was very seriously injured, I was already working out how to raise the subject with the doctors in case he died and wanted to save them from initiating it. They would have found his donor card anyway. I know people are in shock and grief but to have the chance of giving a life or a better life to as many as six people after death. What's not to like about that?

    Interested to know what others think.

    K

  • Hi, and thank you for your replies

  • Babies do not sign up to be organ donors and I think that lumping it in to other issues such as pathway's and DNRs is muddying the waters with incredibly emotional issues. This is about transplant - from one person to another - that clear audit trail by which someone unfortunately dies and then someone is given new life/eyesight. Not the banking of tissues and the stuff that goes with that.

    I am more perturbed by family members NOT respecting the wishes of their loved one who obviously gave it thought and took the time to sign up to the organ donation register. I may be sitting here in a slightly odd position knowing that one day I will need new lungs but I carry a card and would be furious if anything happened and my otherwise healthy heart, liver and kidneys' weren't at least allowed to be considered.

    Family values are at the core of this - without respect for each other and the decisions in life we make (even if we disagree with those decisions) then this is how we see the breakdown of family values.

    I can absolutely understand what you are saying but I am delighted that the NHS are finally taking a stand and trying to be a bit stronger with the donor's families.

  • Hi there. Im a granny with no parts worth leaving haha. I agreed with much of your post. If you are on

    Pinterest, I started a board called Life is Precious. I would love you to see little Phillip, miscarried at 12 weeks. His brave parents posted that in honour of his short life.she said a person is a person no matter how small. He is so sweet, so humanly real I cried. Please try to find it. Pinterest is a great thing anyway. So diverse. Inspiring. Creative. Everything. God bless M

  • Hi Diana, I've seen the Life is Precious board on Pinterest. It is so sad yet happy at the same time. Not everyone will understand what I mean unless they have had the experience of seeing a baby born too early.

    My own little girl, my fourth child, was born early at 23 weeks. She was fully formed with no imperfections & looked just like her older sisters. She cried when she was born.

    She only lived for a day. I have many photographs of this tiny little person who was just too small & weak to survive.

    Our daughter was truly a blessing 💐

  • Hello again. Just to say that you know we can be reassured that every one of our beautiful 'born too soon' children is as safely in Heaven with the Lord. Of Christ it is written "He took them up in His arms and blessed them. They are not 'nowhere as some want to believe'. Trust me, they are more alive than we are!

    I lost my darling beloved son on the very day he was 5 months old. A chubby milkysoft blue eyed boy. I found him in his cot, too awful to speak of after all these years. He had died suddenly in the night of a rare virus. If only he had been in my arms.

    It haunts me to think he was frightened, or sick or in pain while we slept obliviously. His twin sister now 35 years old sleeping in her cot beside him. But I remember Jesus took them up in his arms and blessed them. So I have 4 adult children still. Out of my 11 grandchildren the Lord lent us two of them for only a brief visit. My beloved grandson for 9 days, died in his daddys arms. My brave grandaughter lived 6 weeks and died before her mummy and daddy could get back to the hospital. These two beautiful little souls are triplets, born at 30 weeks. Their sister is here with us, and praise God 3 more lovely children. All will be revealed in the course of time. All with have meaning and purpose. Joy will come from sorrow. Peace from pain. Goodnight my friend and God bless.

  • I had no idea that private companies could run organ & tissue banks? I hadn't realized we had become like the US? That is quite scary. Reminds me of a book I once read called 'Coma.' Hospital patients mainly on ICU . were unplugged and left to die, or even worse hurried on their way to meet the Grim Reaper, so that wealthy people could buy their healthy organs! Stuff of nightmares!

    All the best

    Malinka

  • I believe organ donation is organised by the NHS in the UK - all part of the same service that co-ordinates the blood donor service.

    Mark

  • Thanks Mark, I stand corrected Here is a link about donation from around the world. americantransplantfoundatio...

  • Thanks, Mark.

    At least for now. However, if this shower get re-elected, every blessed resource will end up in the hands of private individuals and sold back to the 'plebs' at inflated prices. God help us all!

    Malinka

  • The EBay suggestion is ridiculous as it has never been legal to offer animals or livestock for sale and body parts have been specifically banned from the outset.

  • Rib ,

    I apologise for appearing shirty .

    I did not get my point about organ consent across very well.

    What I find worrying about the NHS challenging the next of Kin over consent is that ,it could become the first step in presumed consent. That I do not support.

    Regards

  • Thanks. I think I kind of understand, like your child fills a consent form at uni then forgets all about it. As they age their views change and the family are well aware that the adult child no longer holds the views of their younger student self.

    If I am right, your concern is that the adult child tragically dies unexpectedly and red tape pulls out the uni consent card (although not carried) , gets used to harvest their organs against the family's wishes. Is that right?

  • I would not be in favour of Presumed Consent. As many members will remember from previous threads on this subject, I am utterly against transplants. I would never accept an organ and nor would I donate any. However I do passionately believe in the individual's right to have their choice respected.

    Rib

  • The ebay part was a light-hearted joke, which I stated.

  • I have donated my body for research at the Norwich University hospital and I certainly do NOT want anyone else making any different decisions for me just because I am dead.

  • My Mother regular stated her wish to do the same until I was at college. She was then diagnosed with MS and as this took hold she changed her mind. She specifically wanted to donate her brain and spinal cord to MS research. So when 35 yrs later Mum gave up fighting. Her body was collected by the MS research guys and about a fortnight later we had a coffin back and a cremation service.

    I think that it is important that the individuals wishes are observed. I have never changed my view on transplants but I recognise and respect that others may. It is these finally expressed wishes that should be honoured.

    I am sure that many people die without expressing an opinion. Personally I think that this is a bit like not voting.

    Rib

  • I am glad your Mother's wishes were observed. Thank you for telling me your story.

  • In Wales we now have the "opt out" system - in other words organs are automatically harvested unless you have made a specific request to the contrary. My son made the point that anyone opting out should be automatically sent to the bottom of the list for organ transplant and I intend to go into this in depth (if I ever get the time). I also want to be certain that there can be no "trade" in organs - the Welsh NHS is permanently strapped for cash and woefully inefficient under the present administration so I hope there are safeguards in place.

  • As a person that is relying on a transplant for his son. I think that we should opt out of donation. If you have personal or religious reason or more then opt out.

    However I do think that whatever organs, cells are taken are for transplant purposes only! Anything for research is a separate agreement that has to be opt in.

    My brother in law passed in his 40's and they agreed for his organs to be taken for transplant it appears 5 people have a better life because of this!

    Be Well

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