After going through weeks of testing,I discovered this week that I am not suitable for a lung transplant. Because I have the sarcoidosis in my liver too,the transplant team at Newcastle decided after looking closely at my case,that my liver wouldn't cope with the transplant and they're 100% certain I wouldn't survive.I have sarcoidosis in my lungs,lymph nodes,liver eyes and skin,and i have an inoperable diseased gallbladder,but apart from that im fine bahahaha 😂. But its not a big deal,I either decide to give in now, and sit back and wait to die,or I decide to get up,dust myself off and fight back, and this wee wummin ain't giving up lol.None of us know how long we'll have,I'm in the fortunate position that I know to cherish every second I have in life,and to enjoy every moment I have with my family
I got my new portable oxygen concentrator,a inogen one G3, and we raised enough money to buy 3 batteries.I am so thrilled with it,its given me back my independence, I can carry it my self and I've never been at home since I got it lol ☺.
I am a fighter,I'll kick sarcoids ass.I've fought my whole life,don't worry,I don't mean physically, I'm not some mental thug lmao 😂,and I don't intend to stop fighting now.
I hope everyone's doing OK