I imagine a lot of you have heard of NICE (the National Institute of Health and Care Excellence). If not, they’re the people who give advice and guidelines to the NHS and social care services, about how to treat certain conditions or support their patients around certain issues.
To ensure their advice is sound, they look at evidence, consult with experts and welcome input from patients and the public. After all, your views are hugely valuable and can highlight the issues that need to be addressed.
I’ve asked you for your thoughts on NICE consultations a couple of times, so that we can help feed back to them on your behalf. But what if the BLF didn’t do that? Or if you weren’t a member of this community, so didn’t see my post?
Now NICE wants to know what people think about patients, carers and the public being involved in their work. They’ve put together a 10 minute, confidential survey and would like you to tell them what you think.
We’ve already given our view. We told them it’s vitally important that patients can help shape NICE guidelines. We also suggested they do more to make more people aware of their role in the NHS and how important it is to get a patient’s perspective on their NHS experience.
But it’s not enough for us to say it - it’s even more important that you have your say. Would you mind taking 10 minutes to follow this link and complete the survey?
You might not know about some of the things they talk about but that’s ok. It’s important that NICE are aware of what you don’t know as well as what you do!
Anyone can fill it in, whether you have a lung condition yourself or have a family member or friend who does. Or if this is just something you care deeply about.
The survey is open till midnight on Sunday 17th January 2016.
Thank you for reading.