Coughing and IPF

Thanks Huwie,

Thanks for your comments.

hope it is helping others, terrible disease, we just need a miracle.

Best wishes

Will

So true Mate

The one thing we have learned traveling this bumpy road is

What's good for one can be fatal for another

Stay well

Will

Hi Petebonny,

I was prescribed Pirfenidone by my consultant. Initially it helped me but the horrendous side effect it has of causing not only loss of appetite but I also seemed to go off food. I lost a lot of weight, However, I do hope that you do not suffer from this side effect and that it works for you.

I am no longer on Pirfenidone but am now on Nintedanib. It is too early to say whether it is working or not.

All the best and wish you success with Pirfenidone,

Peter

Thanks Nan

Coughing fits are not as often but my beautiful wife is slipping, now needs o2 more frequently, we wait each day for a phone call from the Alfred hospital.

The tragedy is that some poor soul must depart this life to give Susan an extension with hers

Best wishes

Will

So true

Thanks for your comments

Sometimes I wonder if Susan is going to come thru these fits, and I can see the worry in her face as she struggles during one.

Best wishes

Will