Mrs Lynda Davies: I have had COPD for... - Lung Conditions C...

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Mrs Lynda Davies

19 Replies

I have had COPD for over 20 years, I gave up smoking 19 years ago. I also have osteoarthritis, Type 2 Diabetes, fibromyalgia and had my large bowel and rectum removed 15 years ago due to Ulcerative Colitis so, as you can probably appreciate I am no quitter. The problem bothering me at present is that I use Salbutamol inhaler and Fostair and Tiotropium all through a spacer, I have repeated cycles of Oral and Viginal Thrush. This has been going on for at least 4 years, I am being treated with Flucomazole which, obvious to me, isn't doing the trick. I take all precautions to prevent this problem recurring, but still have the problem. I have recently broached the idea of using a Nebuliser and hands were literally thrown in the air, saying that I'm not giving the treatment a fair go!! PLEASE could anyone help me?????

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19 Replies

You have/had a lot to cope with as many have on this forum. Somebody will answer your question soon but have you tried talking to one of the BLF nurses - they are excellent. Sorry have not the number to hand but easy to find. Good luck Kaye.

in reply to

Hi Kaye, I will try speaking to them, thanks for the heads up. Lynda

Mandy6513 profile image
Mandy6513

Unfortunately some of these inhalers do cause that and all i have ever been told is to gargle each time i use my inhalers and touch wood it has worked so far

Billiejean_2 profile image
Billiejean_2

Hi Lynda, have you been prescribed Nystatin ? It's in a small brown glass bottle with a little squeezy applicator attached to the top. You use this, about four times a day, squirting it all round your mouth and tongue. It's brilliant against thrush.

in reply to Billiejean_2

Yes, Billiejean_2, I have tried Nystan many times over the years as my GP has put this on my repeat prescription I don't know why as he knows it doesn't work for me. I am going to try the live yogurt idea if it is sugar free, I know the plain one is though. I hope it works, I'll let you know how I get on. I am so humbled, and delighted, to find a site where so many people are willing to try to help me!!! Anyhow, I'll let you know how I get on, and thanks very much for your help too. Keep taking the tablets...😉😉😉

peege profile image
peege

healthunlocked.com/api/redi...

Above is a link taken off an aspergillus post. Let me know if it doesn't come through.

it sounds as though you have a very well established case of it. Drastic measures.

Sugar is what feeds the fungal infection so you need to try to eliminate it for three months. I do stress that you'd better check with your GP that it wouldn't affect you adversely . I had to do it once and I've never felt better - I haven't had what you've had to go through though.

I'm guessing that after the gut operation it's more difficult fir the 'good' flora to work in your system.

I take a daily capsule of 20billion probiotic to keep the balance.

Good luck . P

in reply to peege

Thanks for that, and yes I have to be careful to some degree as my body cannot digest certain foods like pulses, and some fruits will give me an upset tummy. I have tried Nystan, no good, Flucomazole which works while I am taking it, but as soon as I finish the course it comes back again. Being diabetic also hinders the cure for Thrush, so I am told, which was why I thought using a nebuliser would help to effect a cure. I will ask for help from the NLF nurses though and see what happens. I appreciate your kind words and will keep in touch.

Azure_Sky profile image
Azure_Sky

I have had awful fungal infections. On one occasion I got Black Hairy tongue. It covered all of my tongue and took away my sense of taste. I am afraid Nystan had absolutely no effect.

Thanks to the members here, I tried taking live yoghurt. The results were miraculous. Within a couple of days, there was a great improvement, soon after, my tongue was back to normal.

I carried on with the live yoghurt for a while longer to make sure. In your case, I would suggest taking live yoghurt twice a day. If you take it soon after using your inhaler it should keep the thrush at bay.

I found a lovely live yoghurt by the Collective Dairy, in Asda, it is in a jar. I liked the raspberry flavour best. There are other flavours. Here is their website which has a store locator.

thecollectivedairy.com/uk/

in reply to Azure_Sky

Hi there Azure_sky, I will DEFINATELY look into your kind idea straight away as I too shop with Asda. I will be in touch to let you know how I get on!!

peege profile image
peege in reply to

Do check the contents though, if it has sugar in it it will feed the fungus and you really need to starve it.

I use Yeo Valley 0% fat plain live yog with just a couple of teaspoons of Activia fruit yog for a change of flavour.

Good luck.

in reply to peege

Thanks peege I will give that a try, everybody has been so helpful, I'm very impressed!!

HampshireLass profile image
HampshireLass

I find Corsydol and Oraldene mouth washes are good for curing and preventing thrush. They are expensive but Super Drugs do one of their own with the same active ingredient. I find it works after a few uses usually. Is thrush a symptom of Diabetes as once a doctor tested me for diabetes when I had a fungal ear infection.

Azure_Sky profile image
Azure_Sky in reply to HampshireLass

I was told my my dentist not to use those mouthwashes as I have dry mouth problems. I can't remember the one she told me I could use.

The ONLY thing that got rid of my thrush was live Yoghurt. The collective yoghurt is really nice. I am diabetic and it didn't cause me any problems. A couple of spoonfuls a day won't hurt.

in reply to HampshireLass

Yes it is, lots of people with diabetes get thrush, so with me being diabetic and using inhalers it can be more prevalent, but I am very careful with my dental hygiene and I too use Corsydol. Unfortunately all my teeth have gone soft due to the use of lots of steroids when I had Ulcerative Colitis, even though my large bowel has now gone the damage has already been done. My dentist is removing two at a time until they have all gone. I will be glad when they have gone as they cannot be filled anymore!! Anyhow I will have lovely white teeth eventually, even though they won't be my own, my husband says I have worn my old teeth out with talking too much, he is so cheeky. Thanks for taking the time to write to me, HampshireLass, much appreciated. Take care, Lynda

onamission profile image
onamission

Hi Linda welcome to the site

in reply to onamission

Thanks for your welcome, onamission. Best regards Lynda

Thanks very much I have had a lot of responses and feel humbled by such helpful, lovely people.

I feel blessed.

I had forgotten as only do sometimes now re thrush in mouth. Like most I rinse out but the other thing to do is get some tinned pineapple and chew thoroughly. The enzymes do something to the fungus!?Kaye x

in reply to

Thanks Kathiesue, pineapple is too fibrous for my stoma to cope with, mango is the same, but thanks for thinking of me. Take care Lynda

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