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Bronchiectasis help please

Kerrieblue profile image
15 Replies

My consultant wants me to take Azithromycin for 6 months but I'm unsure of the best dose. Is 250 mg daily preferable to 500 mg three times a week? Suggestions and experiences most welcome. Thanks all.

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Kerrieblue profile image
Kerrieblue
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15 Replies

Hi there Kerrieblue, I took 250mg three times per week for about six years. It was very good at first then slowly became less effective. There are quite a few people on here who are taking it now and so I am sure that they will be along. I hope that you find that azith helps you.

stone-UK profile image
stone-UK

Hi

What dosaged as you GP recommended, the fact we are all different could mean one persons dose may not be suitable for the next.

I would start with the dosaged given by your GP and see how you get on..

I had it every day nearly killed me heart trouble .. If i had to have it again be 3 times a week like lot others

monkey65 profile image
monkey65

i've been on 250 three times a week. Did 9 months first then four month break, then six months, then another break. Works great for me, but I know some people do have trouble.

Mocarey profile image
Mocarey

I've been on 250mg 3 times a week for more years than I care to remember. seem to do ok on them. M

Suke profile image
Suke

Hi Kerrieblue. I have bronchiectasis with persistent HI type B infection. I started with month on month off of 500mgs 3 times per week. Now on 500mgs 3 times per week every week which is much better. Basically I am taking what the consultant prescribed each time. I hope you get on well with it. Take care.

Sue xx

Billiejean_2 profile image
Billiejean_2

I've been taking 250 mg daily for three years now. Not sure if it's achieving much for me but I'll keep taking it as long as I'm asked.

clematis5932 profile image
clematis5932

Kerrieblue I also am on 250 daily for twelve months started them in April and have only had one infection which I am just getting over. I was told that because I am very low in weight he wanted me to take it every day.

grannyjan profile image
grannyjan

I took it 3 times a week, sorry can't remember dosage jan x

Kerrieblue profile image
Kerrieblue

Many thanks for all the replies, will talk it over again with my doctor.

wheezybronch profile image
wheezybronch

I take many medicines some for bronchiectasis, I take Azithromicin because besides being a great anti biotic it is also a fantastic anti inflamatory. My dose is 250mg on Monday, Wednesday and Friday. I think that it all depends if it is the main AB or a back up (anti inflamatory) I take nebulised Gentamicin as the main one. Good luck !

DunCaan profile image
DunCaan in reply to wheezybronch

Your on same meds regime as me - I am just starting Azithromycin and hope my heart is ok as I have prolonged QT! My lung has been so inflamed so hope it helps here. Take care

wheezybronch profile image
wheezybronch in reply to DunCaan

Sorry , I don't come here regularly. I have found that Azithromycin has been nothing short of miraculous. I have had arythmias, atrial flutter and atrial fibrillation for which I had an ablation, I have no arythmias now. Having a prolonged QT may increase the odds of something going wrong but, for me, it was all worth it, I have not been hospitalized for over two years for bonchiectasis exarcerbations (in fact, anything at all.) I wish you the same good fortune !

inhaler1 profile image
inhaler1

Hi.Kerrieblue.

I take Azithromycin for Bronchiectasis, i prefer to take 250mg daily only because I know when I have taken, it's very hard to tell if it makes a difference but I have certainly had less flare ups due to infection since starting a few years ago.

I stop taking if I do feel I am haveing a flare up and take clarithomycin daily slow release for two weeks. I do get episodes where I feel unwell but no temp or change in mucus just feel unwell, this is difficult as never sure when to start rescue pack.

Hope I have not gone on too much.

Louisiana profile image
Louisiana

I would definitely go with what your doctor has prescribed.

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