Today turned out to be a really interesting day. I attended a Workshop organised by BLF North-West along with about 20 others where we discussed various issues concerning our relationship with our condition. Topics discussed included when did our condition first manifest itself to what help was/is your GP with managing your condition. Also discussed were "BreatheEasy" groups and whether they needed to be more localised making them more accessible for people who can't travel long distances. Also what would we like to see, in the way of activities, at the groups. Suggestions ranged from carpet bowls to singing groups. Also mentioned, in relation to on-line forums such as this was "Would you rather remain anonymous online or would you rather be on a more personal basis. It was generally agreed that anonymity was desirable in the initial stages of posting and then pm's where both parties consented. Which is pretty much where we are now anyway. At the close of the session we all felt that something useful had come out of our observations and we look forward to seeing the finished report when it is published. Many thanks to Jeremy, Katie and the rest of the team for an interesting and thought-provoking time. And it made me wonder, and I am probably opening the floodgates here(!) but is there anything that BLF could do in your area to make your quality of life easier through BreathEasy groups etc?
I feel sure that after todays workshop BLF would welcome your observations and comments whatever stage in your condition. Mark Pilling's finger is hovering over the delete button as we speak..haha! Have a good day. Regards-Dave.