A lot of sick and disabled people like myself and my dad was left abandoned this year by social services with the implementation of the The Care Act 2014 and changes to attendance allowance personal care budgets.
I know how devastating it can be to be sick and ill and having to care for someone sick as well .. yet alone being abandoned by local authority and left hanging with know notification of changes re assessments AS by the hiding ##### own words it would cost to much to write to everyone.
So this post is for those sick and disabled left wondering hanging by the local authority & social services with regard reforms of adult and social care / personal care budgets.
Hi Daz, that's for posting that clear explanation....does it apply to the whole of the UK or just England....or did I miss that bit.
My late mother had excellent care at home in Wales this year, three hours a day.
My father was in a care home, a top up fee had to be paid as well as social care costs....nursing costs were free, but his money ran out, but luckily he could stay in the home. A friend's children had to sell his home as he had dementia, but the money was all spent just before he died ...they were so worried that he would have to move.
I guess the new act will bring in a Cap on spending...I wonder how it will work in reality.
Best wishes to you and your father, I know what it's like to have health problems and to be responsible for someone else's care as well.
Hi. daz, I just checked ...the Act applies to England, but Wales is similar I think.
Just wondering about your dads needs , does he have an alarm system like the telecare my mother had ....she also had poor hearing and sight, and social services provided aids such as a amplified phone, doorbell and magnifiers, and later a walking aid and bed guard.
I lived 250miles away so I arranged Attendance Allowance which paid for a cleaner and a carer who did her shopping. The Red Cross volunteer visitor scheme was also offered, but she declined that.
Thanks D3, it is hitting hard the new social care. Age Uk are still campaigning to save the day but I think it is a losing battle there are only so many pounds in the funds for social care and this year all as gone up price wise, so with less funding the cuts become harsher. But sadly thats not the answer we disabled,elderly and alone want to hear. My mum after coming through the wars has to be subsidized by her savings or family to be in a home that can care for her needs. The new act dose cover the whole of England doesn't it D3. Best wishes with managing your care needs x
Come and live in Devon. Since I left hospital after a COPD flare up the hospital outreach team have been to see me nearly every day. I have had no end of help from various departments for which I am thankful and can't praise them enough. I'm sorry you're experience hasn't been the same. Bobo
Hi Denis,yet again the Tories make the least well off bare the cost of the bankers bungles! Who voted in these sickos?Very few are prepared to admit voting Tory,is this because they are so embarrassed.They should be.D.
Hi farmer, liked your post, should be said more often. I heard a story at the weekend that really made me weep, elderly woman, bed bound but mentally on the ball, was being fed by carer and at the same time her soiled pad was being changed, her son walked in on this. So when there's talk of austerity (poverty creating) and we are all in it together, and how the rich must not pay fair tax, and how wealth will trickle down etc etc, I think of this woman, and weep, i didn't vote Tory and I've never knowingly kissed one either. Trust your ok farmer x
I loathe the Tories, I would no more vote for those selfish fat snobs than fly to the moon.
When one of my grandaughters worked as a visiting carer, (she is still on maternity leave) she was given a strict timetable. The times given are ridiculous.
Oh I see now thank you Toci I think it does depend on where you live I worked in a nursing home and people who had worked were made to top up themselves yet people who never worked were able to keep all the state pension. The home I worked in was sold to a private company the standard of care dropped with the staff wages very sad
I know several people who voted for the Tories. They all said they didn't believe what was said in the media, and that they thought Labour didn't have a team that could run the country, or that they would trust to. x
The packages were introduced to take some heat off the NHS by making it possible for people to stay at home and still receive the care they need. Where you live will not matter. The cap on financial packages is set at £72,000, which is nowhere near as much as it sounds and when it comes into effect (April 2016) there will be many who will struggle after getting help for a while. For example if someone needs a level of help, costing £250 per week (£1000 per month), they will only receive help for 6 years. Then the money runs out. What happens then?
The government are crazy. On the one hand, they go on about living healthily so people live longer and taxes on alcohol and tobacco, keep rising under the pretext of saving lives.
Then when people are old, it seems the object is to screw as much money as possible out of them for their care, being mean with the allocation of funds, to enable people to live at home. Or to force care homes to cut back on staff and facilities.
Being old and disabled in this country, is a nightmare. So many old people have become isolated from their families. They have paid taxes and insurance all their lives. Now at the very time they need help, the greedy Tory government abandon them.
Hi AS, I can't understand why Wales provided such good quality care at a reasonable price to my mother at home, yet England doesn't seem to do the same.
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sorry could not be more personal to each and everyone but had lot going on at personal level 
transplant with no social support?
After years of being careful... 
Palliative care, does it still exist?
End Game. Advice on Palliative Care. 
