The RePnue coils.: Can anyone please... - Lung Conditions C...

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The RePnue coils.

Mikefever profile image
7 Replies

Can anyone please tell me if they have read about RePnue coils lately .I read about six months ago this procedure of putting coils (like paper clips) into damaged lungs, was going to be a great procedure for people with server COPD, since then I have not heard anything about them.

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Mikefever profile image
Mikefever
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7 Replies
stilltruckin profile image
stilltruckin

nice.org.uk/guidance/ipg517

Mikefever profile image
Mikefever in reply to stilltruckin

stilltruckin.

Thanks for the link, I was told has I a FEV of 18%, at the moment my lungs will take this procedure .

CornishBrian profile image
CornishBrian

They seem to be being superseded by the valve but that is also only available on clinical trial. They are recruiting for it at the moment...two hospitals that I know of are Kings Mill, Mansfield and a hospital in Sheffield. I have just started at Kings Mill but the screening process is quite long. They do pay travel expenses and have folk travelling from London and even farther afield.

Mikefever profile image
Mikefever in reply to CornishBrian

CornishBrain.

Thanks very much for reply.

kitt profile image
kitt in reply to CornishBrian

My consultant wants me to have this. He didn't say anything about it only being trIals . Must admit I'm not keen until I speak to a few who have had it. I think they do it more in the states

CornishBrian profile image
CornishBrian in reply to kitt

The trial that I am on, is from USA. When I have had the scans etc, they are sent to California for them to scrutinise and they have a say as to who is or is not suitable. The trials for moderate COPD have already finished with very good results. That is why it has now moved onto severe COPD patients.

hallentine47 profile image
hallentine47

My consultant says he wants to learn more about long term effects as some negative results are being found such as values clogging with mucus and harboring infections.

A mixed bag really.

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