I understand exactly where you are coming from Angel. The steroids and immobility from my illness has resulted in a weight gain of five stones (it came on in 4 months), I was gutted but being so ill I felt powerless at the time. I did manage to lose three stones however last winter I was really ill again, the steroid dosage went up again and the three stones came back in a matter of 3 months.
I too have had some comments made that upset me from a new consultant and a new practice nurse who do not know me and do not know that prior to my illness I was a normal weight and fit and healthy. However my usual consultant and other doctors and practice nurses are nothing but supportive.
Up until the end of summer I was unable to walk more than a few feet due to my extreme breathlessness. I cannot walk much further now!
Thankfully I have started to improve and I joined slimming world in September and have managed to lose a stone, but I have a long way to go yet. I dread having another exacerbation and steroid dosage increases. The cold weather fills me with dread.
I am unable to do conventional exercise due to my tracheomalacia. I have attended pulmonary rehabilitation in the past but unfortunately I am not able to attend as any exercise I undertake I have to do connected to my CPAP machine ( would be restrictive and embarrassing). My local respiratory physio has given me exercises that I can do at home whilst connected to my CPAP machine.
Unfortunately, I am stuck on prednisolone for life as I developed adrenal gland insufficiency as a result of being on high doses for long periods but I am determined that I will win eventually. I try and keep positive which helps.