Was diagnosed with IPF 12 months ago and it is steadily getting worse. Have been on Azathioprine for 3 months but a Liver Function Blood Test has shown a worrryingly high level of one of the items they check so have been taken off and am only on 15mg Prednisolone until this level comes back to normal.
When it does they want to put me on to Pirfenidone which can have so many side effects that I don't feel I want to have this. Quality of life against extra time!
Anyone been on this medication, and if so, how did you cope with any side effects? Also did you stay on it or were you taken off?