I have been a member of this site for a few years, my hubby has COPD, Chronic Heart Failure, and is now in the end stage of both conditions. I have been his main carer for 10+ years, he is still cared for at home.
I on the other hand, until 6 months ago, was relatively fit, at 60 I had recently been diagnosed, last year, as needing heart bypass.
Then a bombshell was dropped in May this year, that I now have Pulmonary Fibrosis.
I had been struggling with breathlessness, thought to be heart related. But no, the lungs were the problem.
So lung transplant is out the window, because of heart, and heart bypass is out the window because of lungs, **it happens, you just have to get on with what you got, and make the most of every day.
I have in the last 6 months been reduced from washing and dressing hubby daily, to not being able to even wash myself, I now have carers in, as often as hubby.
I would estimate to have lost about 50% + of lung capability, in the last 6 months, not good. Methinks this disease is going to kill me off quicker than hubby, and he's only got a year or so left. But we have agreed who goes first will wait around for the other one, after over 40 years married, we intend to go on the next big adventure together, as always.
As you can probably guess from my witterings, I am a positive person, always finding the silver lining somewhere, even if it is hard to find some days.
I intend to participate more in the Forum, that is if you will accept me.