My Son is on his second Chemo!

Up-date on my son's AML treatment. He has now stated the next stage of Chemo which is 50% stronger than the last lot and they are now looking world wide for a donor. He is not doing so well with this one as the last. He is Vomiting a lot and food has lost all it's normal appeal (He loved his food)

He was moved last night while we were there to a single room as he will soon be neutropenic sepsis. He will be open to any infection that normally would not bother any of us. But strangely it is the bugs laying in his own stomach that will usually knock him down it appears.

Because of the treatment he will need to have any new blood he may need irradiated before being given it and will need to carry a card for the rest of his life stating this.

Be Well

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46 Replies

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  • Thinking of you and your son, oc. This must be so difficult for you. xx

  • The worse thing is seeing what it is doing to him but knowing it is the only way forward.

  • Offcut, both you and your son are in my thoughts. A difficult time - love and best wishes

  • I do feel for you and your poor son Offcut as it must be distressing. But don't forget while there is life there is hope. Am thinking of you all. xx

  • PMA all the way.

  • Oh dear I'm so sorry Offcut. This must be so hard for you all as a family. Thinking of you and crossing everything for a donor. Peege xxx

  • Most come from Germany as they have an opt out scheme which I have always been in agreement with.

  • hello offcut i do feel for you and hope all goes well

    take care

    Dorothy

  • Thank you.

  • So sorry for your son and your family.

    Its got to be heartbreaking ,watching him go through this. My thoughts are with you , Offcut. I watched my son with liver failure. Thank God, a donor came through. One day at a time , gets you there. Bless you...

    Rubyxx

  • They have to knock him down so they get get him back up. But it si still our baby thee in front of us.

  • The very worse thing is watching our kids go though it, so painful, but treatment needed, keeping you and your son and your family in mind and praying for a donor xxxx

  • Thank you.

  • So sorry to hear about your son. At least now that he is in a room on his own, hopefully he won't catch an infection. Hope he will be well enough to go home soon.

    Look after yourself.

    Malinka

  • We got their expensive hospital telly gizmo working so at least he can watch something and take his mind off things.

  • I'm so sorry to here of this offcut, it must be a real worry for you, its terrible to have to watch your own son like this, i feel for you not so much.

    like the others i pray you get a doner asap.

    take care of yourself, i do hope things turn out ok

    jimmy

  • Thanks Jimmy

  • Am so sorry for your son and you and your family. Can only hope a donor is found soon. Thinking of you all. Take care xx

  • We have our fingers crossed.

  • Thinking of u all, this is a very personal and close issue for me to offcut ( as u know ) so best wishes to u all xx Sonia xx

  • Thank you

  • I am so sorry that your son is so sick with the treatment it sounds like they are trying their level best to kill it off.

    Sending positive thoughts and love huff xxxx

  • That is the plan. Then once they have a donor he will have to go to another hospital 35 mile away for the transplant and further treatment.

  • Sending you a big hug, all we want to do is swop places with our children and grandchildren when they are on well,

    My very best wishes to you and your family

    Sally xx

  • So true, just watching and not being able to help is horrible.

  • My very best wishes for a speedy recovery for your son Offcut, a difficult time for all of you. xx

  • Thanks

  • Poor lad, he is really going through it. It will be worth it though Offcut. Wishing your son, yourself and family well. Thinking of you all. xxxxx

  • Now we all understand the illness and treatment better things are becoming more positive but it is not a pleasant watch.

  • Hi offcut, so sorry to hear about your son, a very difficult time for you all. I hope the treatment works for him, although it's unpleasant to say the least, but if it's the way forward then it will be worth it in the end. I hope and pray a donor will be found soon.

    My thoughts are with you, and sending lots of love and hugs.

    Take care,

    Christine. XXX

  • Thank you. It is a shame that we do not have an OPT OUT system here, it would help so many people.

  • Is there nothing that will ease the vomiting, maybe someone out there was helped by something and can pass it on. the tv will help distract your son, am sure he is grateful for that. wishing you sll the strength to get through this difficult time. Love Iris x

  • They are giving a anti vomit drip. It seems one of the stomach injections is upsetting the system as it is forcing the white cells out so the chemo can kill them?

  • Thinking of you all at this difficult time. I hope your son has a speedy recovery,

    Sending love and hugs to you all..

    Velvet xx

  • Thank you so much.

  • Poor lad, it sounds like he's going through hell.

    I hope a donor is found soon for him.

    I hope everything works out for you all Offcut. xx

  • We are all supporting him it is just a waiting game. They have said that he should look at at least another 12 months of not being able to work. Which is a worry as he will not be paid after 6 months.

  • Thoughts and prayers for both your son and for you and the rest of the family, Offcut.

  • Thanks

  • Two friends have both told me the chemo gets 'progressively worse' but the good news that they are both doing well now, so hopefully it will work for your son. Must be so so difficult for you - take care of yourself too and all best wishes. xx

  • It is a case of they have to knock him down to get him right. He is continually having something put into him so is now exhausted.

  • Thank you for the update this must be a scary time for you and the family and I hope this second lot of treatment goes well how long is it going to take.

    How are you and is your health good at the moment we are all thinking of you

  • Gout is coming back and the joints are not fairing well with all the extra walking we are doing :(

    My Breathing has been better but now the weather has changed and the nights are colder I am getting SOB.

    Onwards and upwards!

  • It never rains but pours' I do wonder how healthy people would cope in a crisis I think when you have a long term medical condition you look at life differently.

    We are always hear for you we can't take your pain away but we understand stay strong take care

  • So difficult for you Offcut and your family to see your Son so poorly. You are all in my thoughts. We are all rooting for your Son.

    With love

    cx

  • Thank you

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