Hi, I'm new to posting on the sight but have been an avid reader for a couple of years. The reason for posting is that I am hoping to find someone else who has the same rare lung illness as myself. I was diagnosed with Diffuse Pan Bronchiolitis (DPB) in March 2015 after two years of progressively becoming very unwell.
I have asthma, since the age of 5yrs, have been diagnosed with Bronchiectasis in 2005. I have always tried to keep health and exercise my lungs, so I used to run at least 20 miles per week. In 2012 I completed the London Marathon for the 4th time, and by the end of the year I was unable to run to the end of the road. I began to cough continuously which was always productive. After one hospital wasted my time, I was eventually referred to The London Chest Hospital. Here they took me seriously and after many test I was eventually admitted to be treated with intravenous antibiotics for 3 weeks.
Before being admitted into hospital my lung capacity had reduced to less than 50% due to them being filled with mucus, I was drowning. I have now gained most of the lung capacity back, but am unable to continue with my former exercise or anything where I'm exerted, walking is about it. My chest is very sore and my breathing can be laboured at times, the damage done is not known yet.
Due to the nature of this rare lung disease there is not very much information on it. I'm taking Azithromycin daily, this is basically keeping the lungs calm so hopefully they will not fill up again. Infections are my worst nightmare as they don't always present themselves as I expect, if an infection is not caught quickly then it can cause trouble.
It would be nice to find a fellow DPB sufferer, as it's not very nice going it on my own!
Sorry for the long post but didn't know where else to go.